I am struggling with AI and having some of the side effects that are being discussed. I had a high Oncotype DX number and had chemo and radiation following a lumpectomy 7 years ago. I am worried about recurrence due to that number, and am afraid to go off the AI ( Aromasin). I walk two miles everyday, but am having trouble doing anymore than that. I’m wondering if anyone has tried yoga and if that has been helpful. My main complaint is lower right back pain, and hand, knees, and toe joints ( and, of course, foggy brain!) It’s been very validating reading these posts and realizing I’m not crazy!
Nancy
Tuesday 5th of June 2018
Kim, You're not crazy. We understand, so yes, there's lots of validation here. I'm sorry you have issues. Be sure you talk about them with your doctor and get help managing them.
Pamela Chester
Saturday 9th of September 2017
I made a decision half hour ago after only 2 months of Anadtrozole! April after Mamo, left breast with lots of calcification and inflammation, DCIS, stage 0 but Grade 3! ER & PR strong positive, horrendous biopsy = huge hematoma, 2 partial mastectomies, of which surgeon said. "CANCER GONE. GONE!" Then 25 radiation treatments and the start of Anastrozole. Already having lots of side affects but the worse is brain fuzz and shortness of breath. 73 years old and I want my former ....self....back if it is not too late! I am gong to wait a week before I tell oncologist. I know Medicare gives a $ bonas to centers for good treatment and hopeful no reoccurrences. But.......I have to make my decision through prayer, articles like yours and now understand that there are tooooo many negatives. " I also think it exposed a glucose and thyroid challenge now. "
Are lab results based on statistics or 100% proof?
Danne
Wednesday 2nd of August 2017
2 August 2017: Survivor of a lumpectomy for a 1cm tumor with positive margins, estrogen based. Lymph node clear. No chemo, questioning radiation but put on Arimidex. Was on for 4 days felt out of breath and BM's were very blond in color. Didn't like feeling so called doc and she stopped it for 3 days. See doc tomorrow and she only mentioned Aromasin as an alternative. What is Femera?
Nancy
Tuesday 8th of August 2017
Danne, Femera is another aromatase inhibitor. Hope your appointment went well.
Cathy Kilpatrick
Wednesday 26th of July 2017
7/26/2017...Can you tell me what, if any side effects there are from stopping Anastrozole? I have taken it almost 5 yrs, which was instructed after my double mastomey. I was HR Positive. It was caught early, there was nothing in my nymph nodes. I took chemo afterwards for a precaution an started on my Anastrozole for 5 yrs. Now that I have stopped taking, about a month now, is there anything I should be looking for to change? Side effects...good or bad?
Nancy
Thursday 27th of July 2017
Cathy, Everyone is different, so it's hard to say. Hopefully, you start feeling better!
Kim Toothman
Monday 4th of June 2018
I am struggling with AI and having some of the side effects that are being discussed. I had a high Oncotype DX number and had chemo and radiation following a lumpectomy 7 years ago. I am worried about recurrence due to that number, and am afraid to go off the AI ( Aromasin). I walk two miles everyday, but am having trouble doing anymore than that. I’m wondering if anyone has tried yoga and if that has been helpful. My main complaint is lower right back pain, and hand, knees, and toe joints ( and, of course, foggy brain!) It’s been very validating reading these posts and realizing I’m not crazy!
Nancy
Tuesday 5th of June 2018
Kim, You're not crazy. We understand, so yes, there's lots of validation here. I'm sorry you have issues. Be sure you talk about them with your doctor and get help managing them.
Pamela Chester
Saturday 9th of September 2017
I made a decision half hour ago after only 2 months of Anadtrozole! April after Mamo, left breast with lots of calcification and inflammation, DCIS, stage 0 but Grade 3! ER & PR strong positive, horrendous biopsy = huge hematoma, 2 partial mastectomies, of which surgeon said. "CANCER GONE. GONE!" Then 25 radiation treatments and the start of Anastrozole. Already having lots of side affects but the worse is brain fuzz and shortness of breath. 73 years old and I want my former ....self....back if it is not too late! I am gong to wait a week before I tell oncologist. I know Medicare gives a $ bonas to centers for good treatment and hopeful no reoccurrences. But.......I have to make my decision through prayer, articles like yours and now understand that there are tooooo many negatives. " I also think it exposed a glucose and thyroid challenge now. " Are lab results based on statistics or 100% proof?
Danne
Wednesday 2nd of August 2017
2 August 2017: Survivor of a lumpectomy for a 1cm tumor with positive margins, estrogen based. Lymph node clear. No chemo, questioning radiation but put on Arimidex. Was on for 4 days felt out of breath and BM's were very blond in color. Didn't like feeling so called doc and she stopped it for 3 days. See doc tomorrow and she only mentioned Aromasin as an alternative. What is Femera?
Nancy
Tuesday 8th of August 2017
Danne, Femera is another aromatase inhibitor. Hope your appointment went well.
Cathy Kilpatrick
Wednesday 26th of July 2017
7/26/2017...Can you tell me what, if any side effects there are from stopping Anastrozole? I have taken it almost 5 yrs, which was instructed after my double mastomey. I was HR Positive. It was caught early, there was nothing in my nymph nodes. I took chemo afterwards for a precaution an started on my Anastrozole for 5 yrs. Now that I have stopped taking, about a month now, is there anything I should be looking for to change? Side effects...good or bad?
Nancy
Thursday 27th of July 2017
Cathy, Everyone is different, so it's hard to say. Hopefully, you start feeling better!