I am eager to tell you about a new research opportunity that some of you might qualify for and want to participate in.
As you likely know, the majority of breast cancers are hormone positive and endocrine therapy is commonly prescribed for this group of patients as part of their treatment plan.
Many of you are taking one of these prescribed medications and are experiencing unpleasant side effects.
Yes, we’re talking about the drugs we love to hate. And yes, the side effects can be many and quite unpleasant. Okay, downright nasty.
There is a dark side to these medications, for some of us anyway. (Of course, some tolerate their prescribed drugs quite well.)
Some of you were taking one of these medications and have chosen to discontinue due to those nasty side effects. Others declined to even begin.
Some of you feel supported by your medical team when seeking help managing side effects from these drugs and some of you, not so much.
Regardless, this is your chance to let your voice be heard!
You might want to read and download, Endocrine Therapy – Managing & Making Decisions About Your Aromatase Inhibitor Medication.
Now, about the survey…
This survey is open to participants everywhere, including men, who’ve been diagnosed with hormone-positive breast cancer and have had endocrine therapy prescribed for them.
I love the inclusiveness of this study. This is a rarity. The study is open to women, men, any age, any stage (including mets), those currently on endocrine therapy or with a past history of endocrine therapy, and it’s open to participants from any location. Yes, any!
Dr. Deanna Attai is the lead investigator of this UCLA-backed research effort to gather responses from patients like YOU about the side effects you are experiencing from your prescribed endocrine therapy.
As the survey states:
Approximately 25-30% of patients with breast cancer who are prescribed endocrine therapy do not complete the full course of treatment, and some patients never start. Side effects of endocrine therapy are well documented but there is very little literature on the role of the medical team in helping patients manage treatment-related side effects.
I think we can all agree, the latter needs to change. And here’s your opportunity to help do that!
A little more info about the survey that Dr. Attai shared with me:
All responses are anonymous and once the survey is complete, we will analyze the results with the help of a statistician. We plan to then write up the results with the aim of publishing in an oncology-related journal. This will rely on obtaining a large number of responses. Because we are looking at so many variables, a large number of participants will be required to achieve any statistical significance.
Helping your medical team better understand your side effects from these medications will enable them to better help you (and future patients) manage them.
Again, the more participants there are, the more helpful the results will be.
So, what are you waiting for?
If your breast cancer is/was hormone positive and you are on, have ever been on, or was offered but declined endocrine therapy, why not participate?
Complete the survey.
I did. It’s quick. It’s easy. You get to be anonymous.
If you qualify, I hope you choose to participate too.
Let YOUR voice be heard!
Don’t delay. This survey closes on June 9, 2019.
To learn more and/or to participate, click on the blue link below:
Also, please help spread the word!
Share this post far and wide. Or share Dr. Attai’s post. Better yet, share them both!
If your breast cancer was not hormone positive, consider sharing about this important survey anyway. Yes, it’s that important.
Are you presently on, or have you ever been on endocrine therapy that was prescribed for you?
Has endocrine therapy been prescribed for you, but you declined to begin?
If you qualify, do you plan to participate in this survey, or have you already done so?