What's it like six months post #DIEPflap surgery? #breastcancer #breastreconstruction #mastectomy #DIEP #womenshealth

What’s it like 6 months post DIEP flap surgery?

Note: An audio version of this post is available via my Free Resource Library.

I’m now six months (almost seven, I’m none too speedy with this update), post DIEP flap surgery. On the one hand, it feels like surgery was yesterday. On the other hand, it feels like ages ago.

Even though I’ve been stuck at home (like most people) due to the pandemic, the past six months have gone by quickly. Not exactly sure what’ve I’ve been doing all this time besides hunkering down trying to avoid the virus and trying to maintain some sort of work schedule.

Am I the only one who hasn’t gotten as much done as I’d hoped during the past year of isolating?

(Feel free to humor me.)

So, what’s to report at six months post DIEP?

Reminder: This post is not a substitute for medical advice. I’m offering a few tips for other DIEP flap surgery patients, but they are merely that, my tips based on my experience. Follow the advice of YOUR doctor.

I’m still healing. Yeah, I know. Six months and still healing?

Yep. My plastic surgeon continues to remind me that this is normal. Complete healing takes time.

The abdomen

My abdomen certainly feels better than say, three months ago. Things continue to improve. But, it still doesn’t feel normal — which really means it doesn’t feel like it did before. It’s important to make that distinction. Perhaps it never will feel like it did before. (Input on this, anyone?)

What exactly do I mean?

It’s hard to fully explain, but I’ll try. There is an ongoing feeling of abdominal tightness, which makes sense considering the procedure. This tightness, annoying not painful, reminds me to sit using better posture, so that’s a good thing. Or so I tell myself. For example, if I don’t pay attention to posture while working at my computer, I get uncomfortable. This can vary quite a lot from day to day.

Tip: If you sit/work at a computer, try to maintain good posture.

When I first get up in the morning, all is good, abdominally speaking. When I stand and walk around, the same is true. Sitting too long is what can be a problem. Not a huge problem, but rather a reminder.

So in addition to proper posture, I try to avoid sitting for too long. (Maybe this is why I’ve gotten less writing done.)

Tip: Take frequent breaks when sitting for extended periods.

In addition to the above, I’m still wearing mostly sweat-type pants. Comfort. That’s what I want. Of course, this has always been the case. I’ve always been a comfort over style sort of gal. These days, I pretty much only put jeans on when I go to the grocery store. (Should I be admitting this?)

Comfortable underwear is also a must. If going without works for you, that’s a good option. I really need to get busy searching online for good options for both top and bottom.

Tip: Stick to comfortable, non-restrictive clothing for as long as you want. Keep wearing post-surgical bras as long as directed to do so.

Keeping it real, I will admit that I like my now flatter stomach. However, DIEP flap surgery is NOT like getting a tummy tuck. Hearing that sort of thing makes me cringe. I’m pretty sure a tummy tuck procedure is quite unlike a DIEP flap procedure. Breast reconstruction of any sort is not some sort of “perk” from having breast cancer.

I would gladly take back that little belly pouch if it meant getting back my other original parts. So, do NOT tell me how lucky I am to have had this “tummy tuck perk”. I would also advise plastic surgeons to avoid this sort of comparison.

Tip: Avoid telling someone she’s lucky to get a “tummy tuck” from a DIEP flap surgery.

Exercise/movement

I resumed my walking routine pretty much right away post surgery. I cannot recommend this enough. Walking (when you get the okay) works wonders. Photo below is one week out. In winter, walks can be more challenging. Walking around Target or the grocery while hanging onto a cart is a suggestion someone shared as a way to get in wintertime walks. Of course, you’d need someone with you early on.

#6 Months Post #DIEPFlapSurgery - What's it like at? #breastcancer #breastreconstruction #mastectomy #womenshealth #surgery
Can you spot the drain tube?

Recently (like a month ago), I started lifting weights again. I started with light ones. Up to three pounders now. Woohoo! The point is, after you get the go ahead, start slow. Light weights are still weights.

In addition, I really wanted to start regaining core strength. I was thinking sit-ups. My doctor isn’t a big fan of sit-ups post DIEP. So, be sure to ask yours. Mine favors yoga and controlled, modified sit-ups and planks.

(I’m glad I asked.)

Upon Googling, I came across a couple helpful YouTube videos addressing rebuilding core strength. The one I’ll tell you about here is via my esteemed fellow blogger and advocate, Terri, founder of DiepCFoundation (a great resource for anything you want to know about DIEP, btw).

It’s important you do not do any of these exercises without your doctor’s approval. Even at six months out, I’m still only doing the first two exercises explained in the video.

I’m also working on forearm planks. Let’s just say, I have a ways to go here. (Why do they look so easy?)

Tip: Walking, light weights and carefully chosen core-strengthening movements — those are the three things I do and recommend.

Healthier Eating vs the scale

I avoid advising others about diet and nutrition. There is far too much finger-pointing and blaming that goes on about how a person should/should not eat. Much of that advice too often feels judgmental. As if before cancer, we were living recklessly eating whatever and whenever. And post diagnosis, if you haven’t adopted whatever fill-in-the-blank diet, you might be made to feel that you are not doing survivorship right.

Yep. A blame-game pile on is what that is.

You might want to read, Stop Blaming Yourself for Getting Cancer.

We all know trying to eat healthy is important. Most of us try to do our best, which means entirely different things to each of us.

Following DIEP flap surgery, your body works extra hard to heal and needs proper nutrition in order to do this. Try to keep that proper nutrition stuff going for the long haul.

Once you reach a certain age, healthier eating is more about exactly that — healthier eating. It’s not about the scale. Okay, not as much about the scale. It’s not about deprivation. It’s not about good food vs bad food. Of course, it never was.

Again, since reaching a certain age, I need to walk a minimum of two miles per day to sorta maintain my weight. I’ve figured out (finally) that this is what works for me. If I wanna eat more, I gotta walk more often and further, so I adjust accordingly. Okay, I try to.

When I first got home post surgery, I was down roughly ten pounds after the initial swelling/bloating phase post surgery. (Yeah, those f****** implants were heavy.)

I’m still maintaining pretty well. But since the holidays, my weight’s been slowly creeping up. (Yeah, weird post holidays, not during the holidays) I can tell I probably shouldn’t allow myself to pack on too many pounds because as I mentioned above, my stomach is just different now.

I mean, where would “belly fat” go now?

Tip: Try to eat as healthy as you can, but do not focus on the scale. This is about your overall, ongoing health.

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My reconstructed breasts

First of all, I will just say (again) the new breasts that I have are reconstructed breasts. They are still nothing like the real deal. It bugs the heck out of me when the illusion is perpetuated that implants and autologous reconstruction methods recreate breasts. They do not.

Some things cannot be recreated. Reconstructed breasts are exactly that. Reconstructed.

You might want to read, Things We Aren’t Supposed to Say About About Mastectomies, Reconstruction & Breasts.

Also, reconstructed breasts do not make women whole again. Women are whole with or without breasts.

I share this quote from my friend Lisa, blogger at Habitual Gratitude, every chance I get:

The sum of my parts makes me whole. I don’t feel less of a woman without breasts, just a woman less her breasts.

Amen.

This a perfect spot to emphasize (again) that no matter what choice a woman makes regarding reconstruction, including opting out, it is her choice and that choice must be respected. Opting for aesthetic flat closure is a completely legit and perfect option that many women choose.

And it goes without saying that saving lives, not breasts, is what matters most in this entire scenario.

For the most part, I am content with the results of my DIEP surgery. My reconstructed breasts feel warm and more natural. Definitely more like me. I also seem to have more sensation now than I did when I had implants. These things are huge. For me.

What about phase 2?

Yes, generally DIEP flap surgery requires a phase two and sometimes a phase three. Implant surgery more often than not, also is not a one time and then you’re done type deal either.

Breast reconstruction is complex and takes time, sometimes quite a lot of time.

You might want to read, 10 Reasons Why Breast Reconstruction Is Not a Boob Job!

At this point, I’m thinking I would probably like a phase 2 when I’ve been vaccinated (still waiting) and when I feel more ready. Maybe this summer I’ll do it. Maybe. Then perhaps nipple tattoos. Again. Or perhaps not. I can only deal with one phase at a time.

You might want to read, Nipple Tattooing, the Final Step in the Long & Winding Road of Breast Reconstruction. (“Final” step. Gosh, I had a lot to learn yet when I wrote that one.)

So, am I happy I chose DIEP?

If you ask me first thing in the morning, yes. Or when I’m walking around, yes. When things are bothering me, mehh.

I tell myself to make the final judgment at one year post surgery. At this point, most of the time, I’m content with my decision. Ecstatic, no.

But again, patience is required for a bit longer.

Dear Hubby hasn’t said much. He’s super glad that major surgery is behind us. I know that much. He’s also super glad I no longer talk about my dissatisfaction with implants. How does he really feel about the state of my chest?

I’m not sure. I haven’t asked him. Why this is I’m not entirely sure.

Oh yeah, the scar!

We can’t forget about the lovely (not) scar. It’s definitely there in plain sight, along with all the others. Anyone who’s had DIEP flap surgery has a pretty darn substantial hip-to-hip scar. So, forgetting what this body’s been through isn’t even a realistic expectation. I’m reminded every day.

My abdominal scar has been a bit wonky. The left side started healing perfectly from day one. The right side was a bit more unruly. Apparently, this is not an uncommon thing. (I’ll spare you the details about the wonky right side of my scar.)

As far as scar care goes, I have not been using scar cream that was given to me at one of my follow-ups. (Using it was optional.) It’s a gel, and I hate how messy it is. Your favorite lotions work nicely too. I prefer Lubriderm, sensitive skin, unscented. I use another brand, too, with cocoa butter. Cocoa butter is what my plastic surgeon recommended as a helpful healing ingredient to look for. Plus, it smells like you’re at the beach!

I’m only addressing the abdominal scar here. My breast scars are pretty much the same as your run-of-the-mill bilateral mastectomy scars. I’ll just leave it at that for now. After all, you don’t have all day to read this.

Lightly massaging your abdominal scar area is important and can really help but ONLY if, when and after you get permission from you doctor.

Regarding scar care, be sure to follow YOUR doctor’s advice.

Tip: Use scar cream, lotion and massage techniques approved by YOUR doctor.

I’m not gonna lie, there are still days (over the past ten years, actually) when I look in the mirror and say, WTF happened?

I’m pretty sure this is normal though. No, I know it is.

Sure, we adapt, we adjust. We carry on.

But forget?

Not gonna happen.

Tip: Allow yourself to grieve for the old you. It’s okay. Breast cancer is a string of losses. There is much to grieve for.

If you were looking for photos of my scar or chest, that’s not gonna happen either. I’ll leave that sort of thing for others to share. You’re stuck with a very unrevealing selfie — apparently one with Ninja looking on.

Writing and publishing this post was hard enough!

#6 Months Post #DIEPFlapSurgery - What's it like at? #breastcancer #breastreconstruction #womenshealth #surgery #mastectomy
Maybe I’ll post a scar picture at one year. (Teaser!)

So, that’s the update at six months post DIEP.

If you have a question for me, ask away.

Nancy’s Point has a FREE resource library with FREE ebooks, the first chapter of my memoir and more! Get access here!

Have you had any sort of breast reconstruction, and if so, are you satisfied with the results?

Did you opt for aesthetic flat closure, and if so, how do you feel about your decision?

Do you have a tip to share or question to ask?

Thank you for sharing this post!

What's it like six months post DIEP flap surgery? #breastcancer #breastreconstruction #mastectomy #DIEPflap #womenshealth

25 thoughts to “What’s it like 6 months post DIEP flap surgery?”

  1. You are so brave to share this info. Thank you for not sharing a photo. Although if you do one day, I’ll have to share a lumpectomy after-shot. Or a brain surgery shot (that’s really gross).
    Cancer sucks.

    1. You’ve been through so much, and you honestly are one of the bravest people I know. You are honest about your entire procedure and frankly I’m quite jealous I wasn’t able to do it! I did tht implants and 4 yrs later had them removed again. Sometimes I wear the prosthetics, sometimes not. Depends on comfort for the day! Cheers to you Nancy for your forthrightness and all the info you share. It just makes us feel closer to you!!

      1. Donna, You’re very kind. Brave I am not. I bet you’re glad to have your implants out as I know you weren’t happy or comfortable with them. I’m very glad mine are out too. I know they’re a good choice for some, but I was never happy with them. And then, the rupture happened. Thank you for the good wishes. I figure I might as well share about my experience if it might benefit someone. Believe me, there’s a lot I don’t share. Ha Thank you for reading and commenting.

    2. Linda, Well, I don’t consider myself brave. And there’s a lot I didn’t share! I might share an abdominal scar photo sometime. Or not. Not one that shares photos of my reconstruction, so that won’t be happening. I do plan to request all the “photo shoot” pics taken at my appointments. Just to have. For some reason, I want them. Do you have your lumpectomy and brain surgery pics then? And yes, cancer sucks.

  2. Had DIEP flap reconstruction 3/2020, emergency hematoma next day, failed right side one month later. Now going through reconstruction to correct right side and had emergency bleed with that. One more surgery and then I’m done. If any more problems, believe I will stop. Actually had surgeon (not my primary) ask me “but don’t you like how your stomach looks” two days after the right fail. Haven’t seen him since. It’s been six years from stage 3c to now. Grateful for life but exhausted.

    1. Carolyn, I’m sorry you had issues with the right side. You’ll be so relieved to get that final surgery done. That comment the surgeon made was inappropriate especially considering what you were going through with the fail. Glad you haven’t seen him since. Believe me, I understand your exhaustion. Thank you for sharing and my best to you.

  3. The exercise piece is so important before and after any surgery. Recovery progresses much faster. Walking and lifting weights make a difference, but yes, be safe and return to activities slowly.

    1. Kristie, The exercise component of recovery is super important. Walking continues to be my go-to choice, no matter what. And yes, slow and safe is critical post diep. Thank you for reading and taking time to comment.

  4. That are great tips! Thank you for sharing such a wide variety of details and information along with your personal details. I also haven’t been as productive as I’d hoped but am also learning to let some of that go. We are all a work in progress. ❤️

    1. Abigail, Thank you. Guess we all have had to learn to let some of “that” go. And yes, we’re all a work in progress. Some of us – literally as well as figuratively. Thank you for reading and taking time to comment too.

  5. Nancy, you are looking good, getting up and around and using weights! I had tram flap, not DIEP, and just on one side. I do, however, have the hip to hip scar, which until you mentioned it in your post, I realized I really hadn’t thought about in a while. It’s been nearly 8 years since my surgery and the scar is obviously still visible but it’s not red anymore. It’s faded quite a lot. I don’t remember when the tightness went away but I know that it did. I am thrilled to hear that you have increased sensation in your breasts. I had none at all for a couple of years and it’s still much reduced from pre-mastectomy. I still have mild numbness in my abdomen but sensation there is almost what is was prior to surgery. Since I had the TRAM procedure, I lost an abdominal muscle. I don’t notice much of a difference. Continue to be well!

    1. Elizabeth, Well, my weight lifting has a long way to go. But that’s okay. I had forgotten that you’d had tram flap. I remember one side though. Interesting that your scar is still hip to hip. It’s quite remarkable how our scars fade over time. Even when incisions are made again in initial scars – as has been the case with my top half. I love hearing how your tightness went away and that your abdominal sensation is almost what it was before. I’m hoping for that too. The increased sensation in my breasts isn’t profound, but it is increased. And, of course, still no nipples, so there’s that loss. I appreciate your comments about your tram experience, so thank you. You continue to be well too!

      1. Thank you! I had a nipple sparing mastectomy. There were some healing problems and necrosis, which left it like a pencil eraser that had corrected a few mistakes. I have absolutely no sensation, though, even 8 years later.

  6. Thanks Nancy for your informative post. I am on my 7th year post DIEP. I am so happy that you’re gaining a little more feeling. Like I’ve told you before that is the hardest part for me. Having no feeling in my chest definitely sucks. I feel pretty sure if it was coming back at all it would have happened by now. I still haven’t found a decent fitting bra yet. If you or anyone else have any suggestions I would truly appreciate it. I also appreciate your honesty and tips to help others.

    1. Beverly, 7 years post DIEP, wow! I haven’t found a decent fitting bra yet either. Still using a couple old ones from before that still sorta work. Mostly, still using camisoles. If I find something, I’ll report it in my one-year update post. I know there are a lot of potentially good choices out there. Thank you for reading and sharing a bit about your experience.

  7. I am 2 yrs out of DIEP flap reconstruction which took place at the same time as my mastectomy. It took more than a year to be able to lay on a massage table on my stomach. It was uncomfortable and tight. Part of my abdominal scar didnt heal quite right but that was fixed at the next surgery. I am happy with the work done. It looks good. But I still struggle with the scars, the numbness in the breasts, abdomen and arm. Thanks for sharing the WTF happened moment. Two yrs out and I still give myself a hard time about not “getting over it” yet. I need ton learn some patience with myself.

    1. Diane, Good to hear about your experience. The abdominal impact should probably be discussed a little more at pre-op appointments. I’m glad my PS keeps reminding me that complete healing takes time. I’m glad you’re happy with your surgery outcome. I know what you mean about those other issues/struggles. None of this is a piece of cake. There can be as many of those WTF moments as you need. None of this is stuff you just get over. I’ll share this post, in case it’s of interest. https://nancyspoint.com/moving-forward-vs-moving-on/ Thank you for sharing.

  8. Hi, thanks for sharing. This is a very informative post. I’m scheduled for my delayed DIEP surgery later this month. I thought the timing worked out ok, barring of course any unforeseen complications, in terms of getting out and about this summer with my family. But it sounds like recovery is much longer than I thought it would be.

    1. Miriam, Yes, recovery takes time, but my initial recovery actually went a whole lot faster and easier than I ever anticipated. It’s complete healing that I tried to address in this post. That can take a while to resolve. You’ll likely be able to get out and about just fine with your family this summer. I hope that clarifies a bit. Good luck with your surgery. Hoping all goes as smoothly as possible. Be sure to get all your questions/concerns addressed beforehand. Thank you for reading and taking time to comment too.

      1. Hi Nancy,

        Thank you for the follow-up, that’s good to know. Your blog is immensely helpful.

        Miriam

  9. Thank you for this informative post. I had my mastectomy and immediate diep flap reconstruction exactly 6 weeks ago today. I’ve read posts about the use of abdominal binders and compression garments. Some plastic surgeons don’t feel they’re necessary at all, some recommend full 24/7 for 8 weeks, others less…what has been your experience?

    1. Sasha, I’m glad you found the post informative. I was advised to wear my binder for 6 weeks or so. I wore it pretty loosely at night. During the day, I found that wearing it felt good. I felt more protected, more held together or something. Just more secure. I wore it longer than six weeks, though not at night. Just when I felt the need for more support such as when walking or sitting at my computer for any length of time. I’ve heard that some plastic surgeons don’t feel they’re necessary. My advice would be to follow the directions your PS gives. Good luck with your continued healing. Thank you for taking time to comment.

  10. Nancy, thanks so much for this post. I will be headed into the operating room in a few days for my own diep flap, and I haven’t met or talked to anyone who has been through this but you. So thank you for your honesty. If you have any tips that pops in your mind that you remember from that week in the hospital afterwards, I’d be grateful.

    1. Lucy, I appreciate your feedback. Thank you. My surgery and recovery went smoothly. Frankly, I expected things to be a lot harder. Not saying any of it was easy, but for me, it was all very doable. Here are a couple posts that might be helpful: https://nancyspoint.com/preparing-for-surgery-during-a-pandemic-11-tips/ Here’s the other: https://nancyspoint.com/how-to-prepare-for-your-mastectomy-twelve-tips/ Good luck with your surgery. Hope everything goes as smoothly as possible!

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