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“Feel Your Boobies” Foundation – My Thoughts

Some blog posts I struggle with a bit to write. This was one of those. When I finished writing it, I also hesitated to push the publish button. Sometimes speaking out about someone, or in this case an organization, is hard. Sometimes not speaking out is even harder. This is one of those times when it was harder not to, so here goes…

The focus of this post is on the tactics of one particular breast cancer fund raising organization. This organization is called, “Feel Your Boobies Foundation.” When I first learned about this organization, I simply brushed them aside because come on, who could actually take any organization with a name like that seriously?

Last week differing viewpoints in the blogosphere and on facebook clashed a bit, to say the least, and the true colors (and I don’t mean pink) of this organization were shown a bit more clearly. A blogger friend of mine expressed her honest opinions about a particular part of their “campaign.” Her opinions resulted in some insensitive comments being hurled her way and she was even banned from making more comments on their facebook page, which speaks volumes in itself. (censorship?? Really??) I hope you’ll read her post about her experience at her blog Uneasy Pink.

Generally speaking, I try really hard to not be judgmental regarding a person’s or an organization’s motives. I try to give everyone the benefit of a doubt. I don’t expect everyone to agree with me, I don’t even want them to. I also firmly believe in everyone’s right to express him or herself however they choose. Likewise, I have the right to do the same. After thinking about last week’s confrontation, I decided to throw in my two cents worth.

The mission of “Feel Your Boobies” is this:

  Feel Your Boobies® is a breast cancer non-profit organization whose mission is to utilize unexpected and unconventional methods to remind women, especially those under 40, to “feel their boobies”. Getting in the habit of knowing what is normal for you increases the chances of noticing a breast lump or other changes when they occur.

I have no problem with their mission statement. They can have whatever mission they’d like. I do have a few problems with the organization in general, however, so the following points are the ones I wish to make.

First of all, if I’m going to be honest, I do have a bit of a problem with the name this organization chose. Supposedly they chose the name “Feel Your Boobies” in order to “lighten up cancer” a bit, bring some humor into it and try to appeal to a younger crowd. I think it’s just another example of “dumbing things down.” In actuality, their “unexpected and unconventional” methods are really just gimmicky and sexist.

But the real problem is, how do you “lighten up” cancer and still be taken seriously as a fund raising organization?

 In my opinion, this tactic fails young people on two fronts.

First of all, this “unexpected and unconventional method” is actually an insult to the younger crowd. I know this because I have a daughter in her twenties and two college age sons who are quite familiar with the non-humorous aspects of cancer. All of them spent hours sitting by their grandmother’s bedside, holding her hand while watching her wither away before their eyes from stage IV breast cancer. They know firsthand about cancer’s ugliness. It’s impossible, maybe even wrong, to gloss over the seriousness or attempt to ”make light” of any aspect of cancer.

A mere two years later they started closely observing me receive a diagnosis and then go through a bilateral, reconstruction, chemo and ongoing therapy. They fully realize I am still at risk for recurrence. They understand the realities all too well. Attempting to lighten reality up with a frivolous sounding catchy phrase somehow belittles their already too-well understood reality.

Young people are smarter than that. They don’t need or want things sugar coated.

Secondly, FYB is a disservice (even if unintentional) to young people because it desensitizes them to what breast cancer potentially still is, deadly; there’s nothing lighthearted about that. Reading some of the almost crude comments on their own facebook page proves my point about their “fans” being insensitive. FYB’s deletion of serious commentary (made by Uneasy Pink and other survivors) further proves it.

In my opinion, my kids and all young people deserve better.

Another problem I have with this organization is they primarily focus on early detection for YOUNG women by, well, “feeling your boobies,” which is fine, but actually by the time a younger woman can feel a lump, it may not be all that early. Also, they seem to fail to recognize the fact YOUNG women can and DO develop stage IV breast cancer. Even if a YOUNG woman finds her cancer early, this does not mean she will NOT develop stage IV breast cancer. Stage IV can and does happen at any age.

Next, and this is my biggest problem, in order for any breast cancer fundraising organization to have ANY credibility it cannot simply turn a blind eye to the other areas in need of dollars such as RESEARCH. Only through RESEARCH will the real solutions of better treatments and a cure be achieved.

If you are professing to be a fundraising organization advocating for women in their fight against breast cancer, you just cannot be taken seriously if you do not also support RESEARCH.

My next concern with this particular organization is the implied message that breasts define a woman’s femininity and even worth. It seems to be saying “hang on to your boobies no matter what; they are what matter most about you.” Even if this is not their intent, such a non-serious sounding name, (which is also marketed on their products) implies this. Again, this is my opinion, but quite a few others seem to agree with me on this one.

And what about the growing number of YOUNG women who are discovering they are BRCA1 or BRCA2 gene mutation carriers? What about them? Many of these YOUNG women are choosing preventative prophylactic mastectomies with or without reconstruction. How do you think they feel when they hear or see the words, “Feel Your Boobies?” Making these tough decisions is hard enough without hearing trivializing words like these.

In the past, I have held the position that I don’t care what an organization calls itself and in all honestly, I probably wouldn’t care what this one called itself either if it was delivering truckloads of dollars earmarked for research. But it isn’t. So I do care.

Fund raising organizations need to be accountable because they are caretakers of the dollars they receive from their donators. They have a responsibility to them. I worry that some people think they are giving to this organization believing it is doing something significant with their dollars. Passing out pink bracelets, magnets or t-shirts to high school students with the words “Feel Your Boobies” doesn’t seem to me like it’s accomplishing a whole lot of good.

It does seem to get kids wearing this stuff sent to the principal’s office quite often though.

I do not wish to “wag my finger” at anyone or any group. Doing that doesn’t really work anyway. If you sound too emotional or “hot under the collar,” no one will listen to what you really want to say. They will tune you out. I know I am at some risk for being tuned out today.

I admit to being a bit “hot under the collar” about this. I think I have a right to be considering my personal experience with breast cancer. I am most certainly not against humor; I am against demeaning women and trivializing breast cancer through “snarky” slogans and comments. In my opinion, this organization seems to do both.

If you haven’t tuned me out, once again what I want to say is this; KNOW where your donated dollars are going. Earmark them for RESEARCH whenever possible. If an organization (such as FYB) is not funneling dollars to RESEARCH, find an organization that is! And also, don’t buy or wear their gimmicky products.

DO check out this organization’s website and facebook page (although remember they do delete the controversial stuff) and take time to read some of the comments left there. Decide for yourself what you think of it. If you don’t like their message, let them know. If you don’t like mine, let me know as well.

Speak up about things that matter to you. Let your voice be heard.

I’d love to hear your voice, even if you disagree with me.

Finally, If you actually took time to read all of this, thank you for not tuning me out!!

What is your opinion about the “Feel Your Boobies” Foundation?

63 thoughts on ““Feel Your Boobies” Foundation – My Thoughts

  1. Nancy,

    Thank you so much for this thoughtful and well-balanced post. This part particularly resonated with me:

    “In the past, I have held the position that I don’t care what an organization calls itself and in all honestly, I probably wouldn’t care what this one called itself either if it was delivering truckloads of dollars earmarked for research. But it isn’t. So I do care.”

    That really is at the heart of this.

    Also, as a mother of a girl still to young for “boobies,” I agree with you. These sorts of slogans are selling our young people short.

    Thank you again,
    Katie

    1. Katie, Thanks for your supportive comments and for restating what the heart of the matter really is. And I agree, your daughter, along with all young people, deserves better too.

    2. A girl, too young for boobies? When will she learn if not now? The point is that the foundation is making people aware. No matter how they do it, if it makes young women pro active, so be it. They’re informed none the less.

      1. Selena, Thanks so much for reading and commenting. While I respect your opinion, I don’t agree with it. I believe it does matter how we choose to go about educating young girls and women. Plus, in my opinion, if you don’t support research, you don’t have much credibility in the bc support world.

  2. I think you’ve hit the nail on the head. I would be much more accepting of this org if they actually donated money towards research to help fight this disease.

    But they are not doing so. And I agree that their method is an insult to their target market, young women. My 19 year-old daughter doesn’t need to be talked down to about breast cancer. Making prevention seem cool and hip is frankly, weird and gross.

    Life is full of serious moments and topics, and breast cancer prevention is one of those. Give young women a little credit please. You can provide them with positive information and encouragement without being overly cute.

    And their censorship policies re Facebook comments are beyond the pale, as far as I am concerned.

  3. Brilliant post Nancy and so #cancer rebel! I agree with you that our younger people do deserve better and not these “dumbed down” campaigns. My sister in law has a 3 and 4 yr old and we were talking about how to deal with my illness with the kids. Her attitude was she likes to tell the kids the truth. So that’s what we’ve done. They’re not frightened of me, they understand when air kisses are needed and they know I’m not feeling well and take medicine that makes my hair fall out (4 yrs old did ask if his daddy was on the same medicine as he is bald too!). But the point is we don’t give kids enough credit. We’re also not encouraging future activists and indeed empathy and deeper thinking with campaigns like this. Its a disservice to the breast cancer realm on so many levels. And the comments on the FB site prove the point that this is about a sexualized trivilized notion. Not breast cancer at all! I tried to engage the founder and make the point that it is erroneous to say BSE saves lives. I found my cancer via BSE but it didn’t stop me metastasizing. Of course my points were deleted as apparently actual breast cancer survivors and patients should not be seen or heard by this organization. Probably because the truth hurts business. It’s not fun or sexy.

    1. Anna, Thank you for taking time to express your feelings on this. I agree, kids deserve so much more credit than they are sometimes given. Too bad your comments were deleted, I think that speaks volumes in itself. While I support this organization’s right to express themselves in any way they choose, I personally cannot support their tactics and their apparent disregard to the serious business of funding research.

  4. Great job here! I absolutely agree with your sentiments and you’ve done a great job articulating the problems without flying into a rage. I think that’s what I’d wind up doing. This isn’t an organization that we can afford to just “live and let live.”

    I can’t help but feel that their efforts might be better suited for some kind of body awareness campaign. No, women shouldn’t be ashamed of their breasts (or lack thereof) – they should be empowered enough to define themselves beyond their cleavage, and brave enough to refrain from babytalk to describe parts of their own bodies. I feel like there’s a lot of BS going on over there about trying to make BC more palatable (and it can’t, won’t, shouldn’t be) when really they can’t even bring themselves to utter the word “breasts” for fear of scaring off the 13-year-old boys. It’s really very puzzling, but it sure isn’t helpful.

    I’m encouraging my loved ones to donate to research-oriented organizations and to speak out about why stuff like Feel Your Boobies is unhelpful and even hurtful to the cause, not to mention to people who have experienced enough pain living with, and dying from, this disease. The intention from FYB was surely not to be cruel from the start, but especially with the censorship, it feels that way now.

    1. Sarah, Thank you for your comments and also for encouraging others to look for research-oriented organizations to donate to. That’s what this is really about.

  5. Oohhh…. Nancy, I am so conflicted on so many different levels about this very thought-provoking blog post. I think I see both sides (and see them so clearly in my mind) that I can’t really comment very well. I just know that when my daughter was 17 and I was undergoing chemo she wore a Save the Ta-Tas-Support Breast Cancer Research shirt to school and was sent home to change because of the word “breast.” Needless to say, Mommy was on the phone right quick with the school. While I understand what you’re saying, I also believe in marketing and getting attention, however it takes….
    Hugs, Lisa
    P.S. GREAT post!!!

    1. Lisa, Well, conflict in the mind is a good thing, right? sometimes anyway?? I am all for attention getting tactics too, and like I said, I wouldn’t care here either if they gave more (any??) dollars to fund research. I don’t like their tactics personally, I think they are demeaning and fail in their mission, but they do have the right to do what they want. I just want people to be aware of where their donated dollars are being spent. And awareness will not bring a cure. Research will.

  6. I would like to introduce you and your readers to Breast Cancer Action Nova Scotia. http://www.bcans.ca Although we are located in the small province of Nova Scotia, we have a history of being one of the first online discussion forums on the web. We have collated an online selection of resources for newly diagnosed and long time survivors.

    The objectives of BCANS are:
    * to heighten awareness of breast cancer as a major health issue
    * to promote the establishment of support services that meet the unique needs of people affected by breast cancer
    * to promote a more informed partnership between patients and the health care team
    * to promote education about breast health and breast disease
    * to develop a network / community of women with breast cancer to work towards the eradication of breast cancer.

    We feel that there are many organizations who are devoted to rasing money for research, but in the meantime, women are being diagnosed every day, and they matter too. They need information and support, and that is what we do. We also speak on behalf of survivors on issues like the costs associatied with living with breast cancer and issues that affect survivorship. We are advocates for a whole group.

    One of our present initiatives is an Adolescent Breast Health module for use in the public school system.

    The Initiative will target girls from the ages of 16 to 18. The education resource was created from consultation with teen girls, healthcare providers and health related organizations/associations, Network Representatives, the BCANS Board of Directors, and Cancer Care Manitoba. The goal is to create a protocol for breast health education that can be delivered to high school girls in Nova Scotia with information they can use throughout their lifetime.
    A full description of the project can be found at http://www.bcans.ca/index.php?option=com_content&view=article&id=67&Itemid=73

    Research matter, but so do all the women who are living with long term effects of Breast Cancer

    1. Elaine, Thank you so much for taking time to share about your organization. Your new initiative sounds quite interesting and far more appropriate based on what you say here. I imagine it does not use the word “boobies.” I support all of your goals. I applaud you for reaching out to young girls in a respectful manner with the purpose of making them more informed. This is wonderful. However, once again, you also mention you do nothing with research because, as you say, others are doing that. Well, others are not doing it all, or anywhere near enough. Again, research will ultimately deliver better treatments and a cure. Also, your last stated goal above is: “to work towards an eradication of breast cancer.” Awareness, and all the other areas you support are indeed important, but they will not deliver a cure. Reasearch will (or I hope it will) do that.

    2. I like the direction Nova Scotia is heading. Our country needs a program for our very young gals without having to use the word boobies.

  7. I think it’s obnoxious of them to delete controversial comments (unless they’re hurtful or innapropriate, which I’m guessing they were not). I think that speaks volumes about the organization in itself.

    The research aspect is another huge red flag. Where does the money go then? Towards more marketing strategies or what? I think that getting peoples attention is important and is really the first step, so sometimes catchy slogans help, but it takes something more than that to make a true change and impact.

    Love that you are speaking your mind. As a journalist, I know how important it is to have a voice! Keep right on using yours! XOXO

    1. Sami, Thank you for commenting. I appreciate your support and I think it’s interesting your comments on their fb book were deleted too. I guess they don’t appreciate healthy discussion much.

  8. Thank you, Nancy, for writing this. Certainly we need to support the diagnosed in as many ways as possible, and you’re right on that research does NOT get the bulk of money raised and spent on the cause of breast cancer. In addition, awareness is NOT cure, and it’s not prevention either. You note that finding a lump does not necessarily mean EARLY detection. More often than not, it means a cancer has been in the body for 7-10 years already and some types of breast cancer do not form tumors. The data does NOT show that BSE finds cancer early or reduces mortality. So, this mission is flawed on many fronts. It’s a relief that people are starting to see that. Finally, YES, YES, YES we are all smarter than this. We do not need breast cancer or body parts to be ‘dumbed down.’

  9. I have conflicting thoughts. I think there is a place for “dumbing down” the message for maybe 14-20 yr olds. FYB is directed to 40 and younger which, I think, is too old for this message. I have had many breast biopsies, my first was at age 16. If I had been given adult breast health material I would have thought it was for older women and threw it in the trash. There are many very young gals, who are not plugged in to the world of breast cancer. They are also developing breasts much younger. These are the ones I believe would benefit from a msg such as FYB. You’re right FYB msg. doesn’t cure, or research but if a young gal is feeling and finding a lump, that could possibly save her life, and that’s good enough for me. Don’t get me wrong, I cringe at some of the sexual tones of some of the comments that were posted/deleted but I chalk that up to immaturity and lack of education.

    1. Robin, Thank you for commenting and I totally understand about your conflicting thoughts. I respect your opinion, but I do not think there is a need to “dumb this stuff down” for young girls, or boys for that matter. As an educator, I firmly believe young people deserve better. If you read Elaine’s comment, her group is starting a new initiative to educate young girls, (I haven’t checked it out yet, but I plan to) and I bet they are doing so in a more acceptable manner. And again, my main problem with this, or any group, is their tunnel vision. Awareness will not eradicate cancer. Science and research will. I’m all for awareness, let’s just not neglect research.

  10. as a woman in my 20’s who found a (benign) lump “feeling my boobies”, i find the name of this organization demeaning and childish. I think the word “boobies” is an immature and unprofessional term to use in a non-profit. even though i am young, i am much more comfortable calling my “boobies” breasts and quite frankly, every time i see this org. i roll my eyes in annoyance.

    1. Nod to Style, I am so glad you took time to comment on this, especially with your own personal experience. You make a good point, the term “boobies” sounds unprofessional for a non-profit. I hadn’t even thought about that aspect! I’m so glad your lump was benign. I hope you keep on rolling your eyes and voicing your opinion. Thank you for doing so here.

  11. I’ve had two benign lumps removed from my right breast. I did not find them, but my dr. did during two different annual physicals.
    I dislike the term ‘boobies’!!! Cancer is not a ‘cartoon’ situation, it is serious, serious and scary!
    Would they consider using ‘Shove it up your ass’ for colo-rectal cancer awareness? Sorry, to be that blunt, but young women mature much earlier today, both physically and mentally. We DO NOT need to ‘talk down’ to them about life-threatening issues!

  12. FYB is a slap in the face to those women living with and dying of this horrible disease. “Sexualizing” cancer is abominable.

  13. Nancy,
    You are spot on! Well said. There’s another organization out there that used to be called “Who Needs Boobs?” They also said they were trying to appeal to a younger demographic, but I found their slogan very offensive and dumbing down. I also know of another group, wish I could tell you, but I cannot, that raises money in the name of doing good for breast cancer survivors, but it appears the one who’s getting the lion’s share of the money is the person behind the website.

    Just because someone is raising money on behalf of a cause, doesn’t make them appropriate or above board.

    Brenda

    1. Brenda, Thank you for contributing to this discussion. Once again, I probably would not care that much what they called themselves if they were delivering truckloads of money for research, but they are not. I also think their targeted young audience deserves more. It’s really that simple.

  14. Nancy, great post, again! I couldn’t agree with you more that the name of this organization is not only crass, but demeaning to younger people. My grown sons would be shocked if they heard such a name existed for a group supposedly out to eradicate the kind of cancer their Mom had. It’s not right to sensationalize this deadly disease, in my view. “Save the Tatas” was one thing, and “Lymphedema Sucks” another, but the “boobies” one really gets to me. I’m glad you pushed the publish button on this blog post! Jan

  15. I could not agree with you more. I also find te term “boobies” degrading and immature…our young women deserve better.

  16. I love your post on so many levels starting with your ability to identify and list the points you feel strongly about. Such as the dumbing down of this discussion. I agree, this whole misssion is insulting to our younger generation, State the facts, they can take it. I’m also with you on the donations for more research, or in this case, lack. Thery’re throwing an awful lot of money away on just their campaign. Imagine the good they could do if they allocated it toward research? You and I know full well that cancer is not fun, sexy or laughable. I support the message, but FYB needs to be more respectful of what they’re actually fighting for. Thanks Nancy.

    1. Stacey, Thank you so much for your comments. And yes, I wouldn’t care as much if they were funneling at least some dollars toward research. Focusing on only one thing (which seems to be feeling boobies) makes them not credible in my view.

  17. I absolutely loved your post. I do not have breast cancer, I have a bile duct/liver cancer (rare stae IV uncurable,at age 38) and have been feeling rather uneasy about some things lately with regard to organizations and “pink washing”. You couldn’t have said it better, more fairly, or more more sincerely.
    Thank you.

    1. Laura, Thank you. Yes, and that’s another problem with this “pink washing” as you call it. The other cancers are too often ignored. Again, unacceptable. Your uneasiness is perfectly understandable. I wish you good luck in your fight.

  18. Excellent post. I’d never heard about this organization before. Thanks for being so eloquent and informative. Betty

  19. Add me to the list of “conflicted” here. I definitely agree that the crude comments should have been deleted. But, I do think there is a place for FYB and I have personal experience with some good they have done. But, rather than clog up your blog, I will likely just give my thoughts in my own blog post. Mostly, right now, I’m just saddened at the fighting that seems to be going on. The focus seems a little lost.

    1. Teresa, I understand your feelings of conflict. I probably have some of the same ones. I don’t think my post was confrontational; I just cannot support ANY group that does not also support funding research, everyone doesn’t agree with that and that’s OK, they don’t have to. There are so many awareness campaigns; I do believe it’s time to move on from that and this organization is, in my opinion, ineffective even with its awareness goal for its target group. So I agree with you, the focus seems a bit lost. I don’t want a fight either, because as I said, then no one listens. On the other hand, I have friends quite literally fighting for their lives and I know I could be in their shoes some day. So… Regardless, debate is good as long as it’s respectful and I think I was. I’m not sure FYB was though, they just deleted me. Anyway, thanks for commenting, Teresa, and I look forward to that post!

  20. Nancy–your post is not confrontational at all. It’s respectful and well thought out. I don’t even really disagree so much as have a different perspective. So I’m taking the time to , I hope, be as careful and well thought out in my post as you were in yours.

    1. Teresa, Thank you for taking time to come back and comment again. I’m glad you didn’t think my post was confrontational because that wasn’t my intent with it. Waiting to hear your perspective.

  21. Hi Nancy,

    Thank you for such a brilliant, thought-provoking posting! I’m so glad you opted to push the Publish button. Your well-balanced, thoughtful posting makes such good points.

    I’ve been keeping up with the whole FYB debacle, and I am completely on board with your opinion. Yes, the mission statement is sound, but there are problems with how the message is conveyed.

    I believe that the organization thinks it’s being cool and totally wants to stay unaware of how the message demeans women.

  22. Thank you Nancy for joining in this discussion. You are so right when you say that humour equals ‘dumbing things down’ – we deserve better than that. Please continue to let your voice be heard. I am listening.
    Best, Sarah

    1. Sarah, Thank you for your comments. Actually, I am not against humor at all, I just disagree with this organization’s methods, but even more so because they seem to be quite tunnel-visioned, only appearing to be interested in one thing and we know what that is.

  23. Well, with a name like Feel Your Boobies, the organization is going to generate lots of attention. So in that sense, it has succeeded. It has gotten plenty of teenagers to wear its T-shirts around school for attention. It has succeeded in being mentioned in several news stories when its T-shirts were banned from certain schools.

    I don’t have a problem with the organization, but I don’t take it too seriously, either.

    1. Lindsay, Thanks for sharing your opinion on this hot topic. That’s exactly the problem so many people have with them, it’s all about attention getting, but it ends up getting attention for the wrong things. I think many (most) people wear those t-shirts for the attention, and don’t give breast cancer much of a thought. But, my main problem with them again, is they only focus on one thing, breast self exams, and they focus on that crudely and not entirely accurately. I like your last point, you don’t take them seriously, well that’s another problem for many survivors because breast cancer is serious and they feel this tactic is belittling and demeaning.

  24. I can’t respect any organization or business that censors comments on its blog or Facebook fan page (just read Uneasy Pink’s post). THAT is a major pet peeve of mine. The fact that Uneasy’s comments were deleted says a lot about Feel Your Boobies (either that or they need to get someone else to run their FB page).

    Also gotta love all the “sexy” comments written my a bunch of men. Those, of course, are not deleted.

  25. I also find the slogan immature. My personal proposal for prostate cancer awareness is “Stick a finger up your ***” I’m guessing you won’t find many middle aged men wearing that Tshirt.

    Actually what got me thinking about this topic was an article I read in 2009 called Sick of Pink.

    http://www.boston.com/bostonglobe/magazine/articles/2009/10/04/sick_of_pink/

    I agree that if they are not contributing to research, they are not part of the solution.

    1. Eileen, Thank you for reading and commenting. Like you, I can’t support the ridiculous slogans and I never support a cancer related charity that doesn’t support research. Or I should say, I don’t any more.

  26. I totally agree with you. I checked out both the web page and FB page. I think that it trivializes breast cancer, to the point of making a joke. At best I would consider it tacky. Thanks for your insightful comments.
    Linda

    1. Linda, Thank you for sharing your opinion and for checking out their web and FB page. Such tactics absolutely trivialize breast cancer and that’s just wrong in my opinion.

      1. Please please keep the message going that certain organizations including this one DO Not fund research and without a CURE Breast Cancer continues to take lives. We need to FUND a cure not discuss awareness or sell the most pink products. Before supporting or purchasing products found out how much money goes towards research.

        1. Julie, It’s an ongoing effort for sure. The answers will only come through research, so you’re absolutely right, a person must ask how much money goes toward research before buying the pink stuff. Thank you for commenting.

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