There are many reasons and traumas that result in people suffering from survivor guilt. Some of these traumas include war, shootings, natural disasters, automobile or airplane crashes, terrorist attacks, and more. This post focuses specifically on cancer-related survivor guilt.
If you’re a person who’s heard those words, you have cancer, you have likely experienced at least moments of survivor guilt from time to time and are not at all surprised to know many other Cancer Havers deal with it as well.
If you have not heard those three thorny words, you might be surprised to realize that many cancer survivors grapple with feelings of survivor guilt when in remission — or even when not.
And, it doesn’t matter what stage you’re diagnosed at.
If you’re an early stager, you might feel survivor guilt because you don’t feel you have or had it as bad as others diagnosed at later stages. If you have metastatic disease, you might feel survivor guilt because you wonder why you’re still here while many around you have died or are rapidly declining.
I’m wondering what YOUR relationship with survivor guilt is like. Be sure to share in the comments at the end of this post.
Since so many of us deal with survivor guilt, I wanted to write about it in my latest book, Emerging: Stories from the Other Side of a Cancer Diagnosis, Loss, and a Pandemic.
I’m sharing an excerpt with you today. I hope you enjoy it and will share about your relationship with survivor guilt in the comments.
SURVIVOR GUILT
(from Part 1, CANCER)
Survivor guilt is common in Cancer Land. Sometimes, you wonder why you’re still here when so many others, often with similar initial diagnoses to yours, are not. Adding guilt into the crapshoot is unhelpful and unnecessary. Nonetheless, add it in we do.
I’m now thirteen years out from Diagnosis Day. Thirteen years. A decade plus three more years. That’s a decent chunk of time. Some Cancer Havers would be ecstatic with another thirteen years; it be almost like winning the lottery.
When you first hear the dreaded words, you have cancer, you immediately become inundated with appointments, procedures, scans and treatment decisions. You and your team devise A Plan. A Plan spells out what to do and when to do it. You follow A Plan and hope for the best.
Why do some Plans work while others do not?
Others in my shoes also had A Plan, followed A Plan, but nonetheless, did not survive. My own mother did not survive, and she had A Plan. I’ve had a dozen+ years post diagnosis. She had only four. Why? Her cancer recurred, and mine, so far, has not. Why? She died from her breast cancer; so far, I’m still here. Why?
So yeah, survivor guilt creeps in.
Of course, there are no answers as to why some survive and others do not. So, before you let survivor guilt, or any sort of guilt, get out of hand, stop and ask yourself if what you feel guilty about was something out of your control. If it was, you have to let it go. Easier said than done, I know.
If that something was in in your control, maybe what you really feel is regret. Either way, it’s probably time to stop beating yourself up about the past. Fretting about the future too much likely isn’t all that helpful either.
All we have is today. We have to make the most of it. After all, living our best lives is how we honor those who don’t survive.
If you are dealing with survivor guilt, you are not alone.
Remember, none of this is your fault, and ultimately, much in Cancer Land is completely out of our control.
After all, everything about cancer is sort of a crap shoot, is it not?
And no one is responsible for anyone else’s outcome. Sometimes, too often in fact, things are just downright random and unfair.
For example, if you’re BRCA+ like me, you might experience feelings of guilt for passing a known elevating risk factor for developing cancer on to your children.
If you’ve finished active treatment, or even if you haven’t, you might have feelings of guilt thinking there might’ve been something you did or did not do to cause your cancer.
You might want to read: Stop Blaming Yourself for Getting Cancer.
You might also think, gee, I’m still here. Am I supposed to be doing something more — whatever that means — with my life?
You might want to read: You Don’t Have to Climb Mt. Kilimanjaro — the Pressure to Be an Over-achieving Cancer Patient.
So, yeah, survivor guilt can rear its head and cause considerable angst.
I’m here to remind you that none of this cancer crap is your fault.
So, be kind to yourself. Ditch the guilt. It’s a waste of time and energy anyway.
Again, as I wrote in Emerging, remembering the following helps me deal with survivor guilt:
“All we have is today. We have to make the most of it. After all, living our best lives is how we honor those who don’t survive.“
Maybe it’ll help you too.
Do you sometimes experience feelings of survivor guilt — cancer related or otherwise?
What sort of thing triggers your feelings of survivor guilt?
How do you cope when these feelings arise?
Click on the image below to read a sample and then, order your copy of EMERGING today!
Helen
Friday 10th of November 2023
Survivor guilt or just guilt, is a repeating theme in my family. My mother, 86yo, has never had cancer, just other awful health issues. She has guilt, not from being a survivor of cancer, but for outliving her daughter and her grandson. She also feels guilt because she had children with a man who carried and passed on a cancer gene, Lynch Syndrome, that does not discriminate between genders. But it wasn't my late father's fault either, it struck him down at 47, way before genetic testing existed. I have found out that his father suffered the same fate. So far, we have lost my sister at 60yo to metastatic uterine cancer, and she lost her son the year before from bowel cancer, aged 31. She suffered extreme guilt for passing on the gene, which she passed on to all four of her sons. Not her fault. My surviving sister also had uterine cancer but has been in remission for over 20 years. She has passed on the gene to two out of three of her adult daughters, whose children all now face genetic testing and surveillance testing the rest of their lives. She suffers survivor guilt, and the guilt of passing it on. Not her fault.
My two brothers and I did not inherit the Lynch Syndrome gene mutation. I don't know about them, their children therefore missing out on the genetic booby prize thankfully, but I question how my 50/50 chance of inheriting swung the 'lucky' way. Fate is a fickle thing.
Then there's my own breast cancer diagnosis back in 2012. Random? I guess so. I'm still here and thriving as best I can at nearly 56yo, 11 years later. But the wife of a friend, diagnosed six months after me, has already passed away.
And my husband and I have recently lost a wonderful friend to metastatic Melanoma, that first presented to him as tumours in his brain just over six months ago. Until he thought he was having a mild stroke, he didn't even know that he was terminally ill. His diagnosis and death struck me harder than I thought it could. So unfair, he never stood a chance. They never even found his primary cancer. He was about to retire and spend more time with his wife, kids and granddaughter. All that gone in a flash.
I am constantly reminding myself to find gratefulness every day. It doesn't have to be great things. I still allow myself to have some sorrow for myself, my diagnosis and the ravages that cancer and its treatment have had on me and my body. It has been unfair. But it's not my fault I'm still alive.
I think the best way I can honour those I've lost and those who still have unsure futures, is to live my best life.
Nancy
Thursday 16th of November 2023
Helen, Your comments are so astute. I'm sorry you've experienced so much cancer and loss in your family and your friend, too. Survivor guilt can be rough for those of us dealing with hereditary cancer. I remember my mother feeling guilty about potentially passing on the BRCA2 mutation to my siblings and me. Of course, that wasn't her fault, but...well, you understand. As you said, "fate is a fickle thing." So true. And your last sentence sums up how I feel and what I try to do too. Thank you for sharing.
Beth L. Gainer
Wednesday 8th of November 2023
Hi Nancy,
This is a great post that touches on such a real topic: survivor's guilt. Sometimes I feel sorry for myself, but other times, I realize how lucky I am to have survived. At the heart of my guilt is the feeling that I'm glad I survived. It's not that I want other people diagnosed with this hellish disease to die.
When all is said and done, none of us can control fully whether we live or die. It's sheer randomness. All we can ever do is try our best to live.
Nancy
Thursday 16th of November 2023
Beth, You are right. So much about cancer is sheer randomness. And yes, living our best lives is what it's all about - it's a way to honor those who don't survive, too.