Mets

Metastatic Breast Cancer

I’ve wanted to add this page to my site for quite some time. I don’t know why it took me so long…

When you hear the words you have cancer, you think you’ve heard the worst, but of course you haven’t. Hearing you are stage IV is far worse. Hearing you will be in treatment for the rest of your life is far worse. Living with uncertainty on a whole different level is far worse.

Even talking about mets is hard. This doesn’t mean we shouldn’t talk about it. It’s even more important to talk about the hard stuff.

My mother died from metastatic breast cancer in 2008. My friend Rachel died from it as well in 2012. I’ve known too many others who have also died from mbc; you probably do too. I have friends living with mets today; friends who are living lives filled with uncertainty and treatment that for them will be life long. Perhaps you are living with mets yourself.

Living with mets is hard. Finding support and resources shouldn’t be. This page is my effort to help raise awareness for those interested in learning more about it. It’s a work in progress and I welcome suggestions, links, comments and whatever else anyone can come up with to add. I would love to hear from you about what you think might be helpful, especially if you are living with mets.

Statistics say that today there are about 150,000 people living with metastatic breast cancer. Statistics also say 40,000 people die of metastatic breast cancer each year. This number hasn’t fluctuated much of late despite the pink hoopla which seems to contradict this fact. We can’t quietly sweep these numbers away. We can’t neatly package them in pink.

Facts don’t lie. Get the facts about mets at METAvivor.org or mbcn.org.

What else can you and I do?

  • Listen to the voices of those living with mets; their stories matter and need to be heard.
  • Read blogs written by those living with mets. I’ve included some links below.
  • Specify that your donation dollars go to mets research. Tell those who will listen that 30 percent for 30 percent is entirely reasonable and completely necessary.
  • Speak up when you hear someone say, “No one dies of breast cancer anymore.”
  • Don’t stay away from someone living with mets because you’re unsure about what to say or do. Just being there and listening will always be enough.

Loneliness and a sense of isolation are very real for those living with mets. No one can completely change this.

However, it’s unacceptable to me whenever I hear someone living with mets say she/he feels as if she’s/he’s been left standing in the shadows or on the sidelines, abandoned, not listened to, at fault for having mets, or worse, invisible – even erased.

This can change. This must change.

Join me, along with so many others, in bringing mets awareness and the need for more mets-focused research to the forefront.

Be a #fearless advocate. Be a #fearless friend.

A few resources are:

METAvivor.org

Metastatic Breast Cancer Network

Breast Cancer Consortium

Living Beyond Breast Cancer

#BCSM 

The IBC Network Foundation

The Metastatic Breast Cancer Alliance

BREASTCANCER.ORG

Advancedbreastcancer.org

advanced breast cancer community

Here are a few blogs written by individuals directly impacted by mbc:

The Cancer Culture Chronicles

Donna Peach

ihatebreastcancer 

Dancing with Cancer, Living with Mets

Miracle Survivors

Telling Knots

But Doctor, I hate pink

Pink Goose

Dirty Pink Underbelly

Boo-Bee Trap

Regrounding

The Battle We Didn’t Choose

Long Time Living:  Living with Breast Cancer

The Sarcastic Boob

Lisa Bonchek Adams

My Stage IV Life. 

Second Bites

Putting the Grrrrrr In Grimes

 Kate Has Cancer

Not Just About Cancer

art of breast cancer

Bumpyboobs

Mourning Has Broken

Women With Cancer

Coke Floats and Chemo

Booby and the Beast

judesthinkin

Surviving Beautifully

The Chronicles of Cancer

Stickit2stage4′sblog

 

Feel free to let me know what you feel should be added to this page. If you have mets and write a blog, let me know via Facebook, email or Twitter as comments aren’t an option on pages for me at this time. I will add you to my blog list if you’d like. 

Follow me on Twitter and like Nancy’s Point on Facebook!

Join me on Facebook every #MetsMonday to share something you’ve read, written or would just like to say about metastatic breast cancer. Thank you!

 

 

 Be a #fearless advocate. Be a #fearless friend.

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