Metastatic Breast Cancer
Thank you for visiting my mets page. If you’re new here, a good place to start is by signing up for my weekly emails.
When you hear the words you have cancer, you think you’ve heard the worst, but of course you haven’t. Hearing you are stage IV is far worse. Hearing you will be in treatment for the rest of your life is far worse. Living with uncertainty on a whole different level is far worse.
Even talking about mets is hard. This doesn’t mean we shouldn’t talk about it. It’s even more important to talk about the hard stuff.
My mother died from metastatic breast cancer in 2008. My friend Rachel died from it in 2012, and recently my friend Jody Schoger died, too, from this wretched disease. Too many others have died from mbc, too many, just too many. I have friends living with mets today; friends who are living lives filled with uncertainty and treatment that will be life long. Perhaps you are living with mets.
Living with mets is hard. Finding support and resources shouldn’t be. This page is part of my efforts to help raise real awareness for those interested in learning more about it. It’s a work in progress. I would love to know what you think might be helpful, especially if you are living with metastatic disease.
Statistics say there are about 155,000 people living with metastatic breast cancer. Statistics also say 40,000+ people die of metastatic breast cancer each year. This number hasn’t fluctuated much of late despite the pink hoopla which seems to contradict this fact. We can’t quietly sweep these numbers away. We can’t neatly package them in pink.
What else can you and I do?
- Listen to the voices of those living with metastatic disease; their stories matter and need to be heard. And when metsters tell us what they need, we must listen, believe them and work with them to get what they say they need. Lip service doesn’t cut it anymore. (It never did).
- Read blogs written by those living with mets. I’ve included some links below.
- Specify that your donation dollars go to mets research.
- Speak up when you hear someone say, “No one dies of breast cancer anymore.”
- Don’t stay away from someone living with mets because you’re unsure about what to say or do. Just being there and listening will always be enough.
Loneliness and a sense of isolation are very real for those living with mets. No one can completely change this.
However, it’s unacceptable whenever I hear someone living with mets say she/he feels as if she’s/he’s been left standing in the shadows, abandoned, not listened to, at fault for having mets, or worse, invisible – erased.
This can change. This must change.
Join me, along with so many others, in bringing mets awareness and the need for more mets-focused research to the forefront. Because breast cancer awareness without mets awareness isn’t awareness at all.
Are you a metster and interested in being part of an exciting research initiative? Then be sure to check out The Metastatic Research Project.
A few resources:
Gone, but never forgotten
Let me know what you think should be added to this page or how I can make it better. If you have mets and write a blog, email me and I will add you to this list.
Join me every #MetsMonday (or any day) and share something you’ve read, written or would just like to say about metastatic breast cancer. Because every voice matters, including yours.