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Mets

Be a #fearlessfriend. Be a #fearlessadvocate.

Metastatic Breast Cancer

Thank you for visiting my METS page. If you’re new here, a good place to start is by signing up for my weekly emails.

When you hear the words you have cancer, you think you’ve heard the worst, but of course you haven’t. Hearing you are stage IV is far worse. Hearing you will be in treatment for the rest of your life is far worse. Living with uncertainty on a whole different level is far worse.

Even talking about mets is hard. This doesn’t mean we shouldn’t talk about it. It’s even more important to talk about the hard stuff.

My mother died from metastatic breast cancer in 2008. My friend Rachel died from it in 2012, and recently my friend Jody Schoger died, too, from this wretched disease. Too many others have died from MBC, too many, just too many. I have friends living with MBC – friends living lives filled with uncertainty and treatment that will be life long. Perhaps you are living with MBC.

Living with MBC is hard. Finding support and resources shouldn’t be. This page is part of my efforts to help raise real awareness for those interested in learning more about it. 

Statistics say there are about 168,000 people living with metastatic breast cancer. Statistics also say 40,000+ people die of metastatic breast cancer each year. This number hasn’t fluctuated much of late despite the pink hoopla which seems to contradict this fact. We can’t quietly sweep these numbers away. We can’t neatly package them in pink.

Facts don’t lie. Get the facts about metastatic breast cancer at METAvivor.org or mbcn.org.

Metastatic breast cancer, learn the facts.

What else can you and I do?

  • Listen to the voices of those living with metastatic disease; their stories matter and need to be heard. And when metsters tell us what they need, we must listen, believe them and work with them to get what they say they need. Lip service doesn’t cut it anymore. (It never did).
  • Read blogs written by those living with mets. I’ve included some links below.
  • Specify that your donation dollars go to mets research.
  • Speak up when you hear someone say, “No one dies of breast cancer anymore.”
  • Don’t stay away from someone living with mets because you’re unsure about what to say or do. Just being there and listening will always be enough.
  • Download, read and share my new FREE eBook, Voices, Vol. 1, A Collection of #MetsMonday Featured Posts, available via my FREE Resource Library.

Loneliness and a sense of isolation are very real for those living with mets. No one can completely change this.

However, it’s unacceptable whenever I hear someone living with mets say she/he feels as if she’s/he’s been left standing in the shadows, abandoned, not listened to, at fault for having mets, or worse, invisible – erased.

This can change. This must change.

Join me in bringing mets awareness and the need for more mets-focused research to the forefront. Because breast cancer awareness without mets awareness isn’t awareness at all.

Breast cancer awareness without mets awareness isn't awareness at all.

Are you a metster and interested in being part of an exciting research initiative? Then be sure to check out The Metastatic Research Project.

A few resources:

After Breast Cancer Diagnosis

METUP.ORG:  Dying for a cure

METAvivor.org

Metastatic Breast Cancer Network

Breast Cancer Consortium

Living Beyond Breast Cancer

The IBC Network Foundation

The Metastatic Breast Cancer Alliance

BREASTCANCER.ORG

Advancedbreastcancer.org

advanced breast cancer community

The Cancer Couch Foundation

Metster bloggers

Breast Cancer? But Doctor, I hate pink

Breast Cancer Conscript:  Making Peace with the Enemy Within

The Cancer Bus

The Cancer Classroom

Coke Floats and Chemo

Finding a Way

Get Up Swinging

I am the one in eight

ihatebreastcancer

I Won’t Back Down

Julia Barnickle

Let Us Be Mermaids (Susan’s daughter is keeping this blog going.)

The Life I Didn’t Expect

Moments Matter:  Thriving with MBC

No Half Measures

Stickit2stage4

Telling Knots 

Thoughts on Cancer:  the Metastatic Kind

Uppity Cancer Patient

 7777 + Days

Gone, but never forgotten

A Crack In the Wall

Bumpyboobs

The Cancer Culture Chronicle   

Cult of Perfect Motherhood        How many times can our hearts break?                                       

Dirty Pink Underbelly

Lisa Bonchek Adams

Pink Goose

Women With Cancer

I want more than a pink ribbon

Darn Good Lemonade

Anna Craig

Regrounding

The Sarcastic Boob

Not Just About Cancer

Tammy Carmona:  Living Life with Metastatic Breast Cancer

Kate Has Cancer

Pink is Complicated

Beyond the Pink Ribbon

Let me know what you think should be added to this page or how I can make it better.

If you have metastatic breast cancer and write a blog, email me and I will add you to this list.

If you’d like to contribute a #MetsMonday Featured Post, email me as well and let me know what you’d like to write about.

Voices, Vol. 1, A Collection of #MetsMonday Featured Posts is available via the Nancy’s Point Free Resource Library.

Follow Nancy’s Point on Twitter and like Nancy’s Point on Facebook and help me spread the word about breast cancer reality. Thank you!

Join me every #MetsMonday (or any day) and share something you’ve read, written or would just like to say about metastatic breast cancer. Because every voice matters, including yours.

#MetsMonday - Join Me!

Be a #fearlessfriend. Be a #fearlessadvocate.

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Renee

Tuesday 17th of August 2021

Hi Nancy,

I just came across your blog. I have Stage 4 Breast cancer, mets to my brain. I begin writing on CaringBridge, but I recently transitioned it to my own website. I am going to participate in your blogging challenge, but would be honored if you would check out my blog and add it to your list of Mets bloggers. Thank you for all you do.

My blog: www.reneekranking.com

Thank you, Renee

Nancy

Tuesday 17th of August 2021

Renee, You've been added. I look forward to reading your challenge post. Good luck with your new site and I wish you all the best. Thank you for commenting.

Linda

Monday 7th of December 2020

Nancy, I so appreciate you doing this! I started reading your blog when I was down with treatment for Stage 3 and now that I Stage 4 I am still reading, still enjoying, and am fired up enough that I'm going to use the blog on my author website to discuss cancer at least some of the time. This past BCAM really brought some great information to light for me (like a TRUE definition of lobular breast cancer). Sometimes I feel so hopeful for we Stage 4ers! There are wonderful people advocating for us, and it sounds like there are new medications on the horizon.

Carolyn

Wednesday 12th of February 2020

I am so sad that I don't see any new post on mets. This is a difficult journey and we really need the support of everyone who is going thru it.

Nancy

Thursday 13th of February 2020

Carolyn, I'll be posting a new post about metastatic breast cancer next week. I agree that we all need to support one another. Thanks for sharing.

Ilene

Tuesday 20th of February 2018

Nancy, it’s fortunate to have great bloggers like you to add nascent bloggers like me to your incredibly useful site. The circumstances under which we virtually meet, are quite unfortunate. Writing is a therapeutic outlet for me an to share my stage IV experience. My blog: http://www.cancerbus.com I’d appreciate your support in adding me to your list. I’m certain,y going to subscribe and support nancyspoint.com! I have a great mix of caregivers, patients, and the poetry crowd accessing the blog and raises awareness in and outside of our #lifer community. If, because of awareness, perhaps one young poet gets an early diagnosis and doesn’t die from metastatic disease... ❣️

Tammy carmona

Tuesday 6th of June 2017

Nancy thank you for including me in your list. I just had a long conversation with a women who found me on your blog. I remember the women who talked me through my first years with mets. They have passed now but were such a blessing to me. I'm honored to be able to do the same for others. Sending love!

Tammy Carmona

Nancy

Tuesday 6th of June 2017

Tammy, You are very welcome.