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It’s Time for Breast Cancer Awareness Month to “Grow Up”!

It’s time for Breast Cancer Awareness Month to grow up!

There are a lot of things wrong with the pinking of October more commonly, of course, known as Breast Cancer Awareness Month (BCAM). You can read about thirteen things wrong with all the shenanigans here.

But the biggest failure of the whole darn month of pink madness is that metastatic breast cancer has been kept in the shadows or worse, even erased at times.

It’s time for BCAM to “grow up” and more fully embrace the metastatic breast cancer community; in fact, it’s way past time.

In a month that is supposedly all about support, how can the segment of the breast cancer community most in need of that very support be the group most frequently shoved to the side lines?

When you think about it, this is not even logical. If we’re being logical, shouldn’t the group in greatest need get the most support?

Or shouldn’t there at least be some balance?

There has been so much emphasis on early detection for so long now that this is what most people hear and remember about the messaging. The messaging that says, catch it early and you’ll be fine.

Maybe. Maybe not.

Of course, early detection is a good thing, but it is not the whole story as 25-30% of breast cancers (regardless of stage at diagnosis) can and do metastasize later on, sometimes much later on.

With all the attention given to early detection, the other end of the spectrum (late stage) has for the most part, been left out of the pretty-in-pink breast cancer stories.

It’s time for BCAM to “grow up” and tell the whole story, which includes telling about the full spectrum of this disease and at the same time, ditching the stigma so often attached to metastatic breast cancer.

Yes, there is stigma. There is a blame game that goes on when one is not diagnosed early, an unfair and inaccurate assumption sometimes made that if you did not catch it early, it is somehow your fault.

If you did catch it early and yet your cancer metastasized, again, the stigma often comes in because sometimes it’s assumed that you must not have followed the how-to-do-breast cancer handbook carefully enough which, of course, is total BS.

This is all so unacceptable.

And how can it be that after all these years of awareness, so many people still know very little, or nothing at all, about metastatic breast cancer?

I say it’s because the complete story of breast cancer has not been shared for all these years, and not just in October. It’s like leaving the most significant chapter out of a book. There is a gaping hole in the story. The same could be said about BCAM. There has been a gaping hole in BCAM’s story for years.

This might be BCAM’s biggest failure of all.

It has been far easier and more marketable for pink ribbon culture to primarily portray the feel-good, let’s-put-a-happy-face on breast cancer mentality.

It’s been assumed that people only want to see the positive, kick-ass, fighter dressed in pink who proudly and defiantly “punches out” cancer kind of stories.

I think most people want more. Most people want a truthful, complete, non-edited-down and not overly-pinktified version of breast cancer awareness.

People can handle the truth.

We all deserve nothing less and without a doubt; our sisters and brothers living with metastatic disease deserve more support (of all kinds) than they’ve been receiving in Octobers past.

It’s time for that to change. In fact, it’s way past time. It’s time for BCAM to “grow up”.

Because as many of us have said time and time again, breast cancer awareness without mets awareness isn’t awareness at all.

To grab a copy of my FREE ebook, Pink Is Just a Color, Ribbons Are Just Ribbons: A collection of writings about Pinktober shenanigans, Click Here.

When did you first learn about metastatic breast cancer?

If you are living with metastatic breast cancer, do you feel there is a stigma to a stage 4 diagnosis?

Featured image above via Accidental Amazon and used with permission.

It's Time for Breast Cancer Awareness Month to Grow Up! #breastcancer #breastcancerawareness #metastaticbreastcancer

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Tiffany

Tuesday 16th of October 2018

Nancy, I know that the here is a lot of Pink out there. I wish there was a month for all the colors. But honestly, the "Pink party" as you call it, is what got me through! My aunt was BC Mets. 6 years after original dx. Only after 5 months she passed, I found was dx with BC. BRCA2+ to be exact. Which chances are much higher for it to met. But while going through the treatments, the sickness, the fatigue, the tiredness, the worry, the stress of everything- My Pink party helped get me through! It may not be for everyone but it was for me. It started conversations with my family, with my friends, with my 13 year old daughter at the time. And yes, she will have to be tested in a few years for the gene. But it got us to doing more research so that we could help better inform our family & friends. Yes, I do believe there is not enough funding going into the research for ANY type of cancer, not just BC. But that's who you need to address this to. The ones who pull the strings & call the shots. I'm sorry that you don't like our Pink parties. You don't have to come. But for the rest of us, we LOVE them! It makes us feel that this is a step in the right direction. It makes us feel that we're not forgotten or just a statistic. It makes us feel pretty when the doctors tell us that to get through this step you will have to have part of your body amputated, then we're gonna cut out the things that makes us mothers. And all the meanwhile, you're gonna lose your hair, you're gonna lose weight & look like a ghost, you're gonna mentally, emotionally & physically go through a depression that makes you feel like you've lost your identity, your womanhood. I'm not worried about mets. I'm still trying to recover from BC as a 2 year survivor. And I'm especially worrying more so for my only daughter's future. I am 42 and emotionally struggling. I do not want her to be 24-25 & struggling the same way. So I'm going to throw my Pink parties. For me. I deserve them. You can jump on board with me or stay home. But putting down the Pink parties is not bringing the attention to what you want to see change. I'm sorry you are getting the two confused. But "As for Me and My house, we will party in Pink everyday!"

Nancy

Tuesday 16th of October 2018

Tiffany, I am not confused. You and I just have different opinions which, of course, is fine. I respect yours and appreciate you respecting mine as well. Thank you for sharing. My best to you.

Mike

Wednesday 26th of August 2015

Nancy, I just started reading your blog. I truly wish my late wife had been able to read some of these posts. The short version is that she was diagnosed at 39 with Stage 3 BC, with lymph node involvement. After a couple of years of the "garden variety" treatments common in the pink ribbon crowd, they discovered liver mets. 5 years of almost non-stop, extremely debilitating treatments followed until hospice entered the picture in October of 2013, after a failed attempt to surgically implant theraspheres. Five months later she passed. All during this time, I can't begin to tell you how difficult it was for her, and the family, to hear all the well-intentioned, but totally ill-informed, hogwash from the pink ribbon-educated crowd. She was blamed for having mets by some, as if she did something to cause it. She was told, repeatedly, that because some Stage 2 pink ribboner had survived, she would too. We were even discouraged from participating in a few of the pink ribbon walks around the nation because there's some segment that see's metastatic BC as "bad publicity for the cure." Rejected by the very people we thought would understand.

She's gone, but her bravery lives forever in the hearts and minds of those who witnessed it or walked with her on her unnecessarily lonely road. Thank you for your posts here. It is high time that the BCAM program DOES "grow up" and recognize the totality of the disease...including those who don't "win" the race.

Nancy

Thursday 27th of August 2015

Mike, Oh gosh, I am so sorry for your loss and I wish your wife could have read some of my posts too. I'm glad you are. I'm sorry things were made even more difficult for her by all that pink hoopla hogwash. And blaming her for having mets, well, that's just plain cruel. Sadly, there is a lot of misinformation still out there and with October here soon, we'll be hearing lots of the same old, same old. But things are changing, slowly, yes, but they are changing and rest assured, the voices of those living with mets are being heard and we will not forget those who have died. We will not. Thank you for taking time to share and again, I'm sorry for your loss.

Beth L. Gainer

Friday 17th of October 2014

I love this post, Nancy! You are so right: the pink party hasn't invited metastatic patients in. They often feel excluded and ostracized and this breaks my heart. Frankly, I don't think there should be any partying, period, because breast cancer is nothing to celebrate, whatever the stage. Great post!

Nancy

Saturday 18th of October 2014

Beth, The exclusion breaks my heart too. Thankfully, this is changing, but not not enough by any means. And there certainly is nothing party-like about breast cancer at all. Thank you for reading and commenting.

Elizabeth J

Thursday 16th of October 2014

This year seems to have actually shown more mentioning of MBC than past years. Of course, it was so low, the only way we had to go was up. I see some hope that people are beginning to notice we exist. Maybe that will open the way to more research for MBC. 46 years ago my grandmother was diagnosed with MBC, given pain meds, and sent home to die. 19 months ago, three days before the birth of my first grandbaby, I was diagnosed with MBC. I get treatment and a few years, for which I am thankful, but still no cure. We have made progress, but you would think in almost 50 years, we would have made more progress than changing a few months to a few years.

Nancy

Saturday 18th of October 2014

Elizabeth, Your comment is powerful and so true. Thank you.

karen sutherland

Thursday 16th of October 2014

dear Nancy, thank you for a most insightful post and for the powerful message that sites issues such as logic, the dumbing-down of MBC, ditching the stigma, and MBCA working more diligently to cover the full spectrum of BC and providing a much needed and deserved balance of information that includes MBC . I thank you for your passion together with your tireless effort of speaking out with ideas and words that matter. and I will read the report from the MBCA report that Jodi spoke of'

much love,

Karen OXO

Nancy

Friday 17th of October 2014

Karen, Thank you so much for your supportive comments and I'd love to know your thoughts on that report. xo

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