The other day I read a piece by fellow blogger, Lori Marx-Rubiner called, “When a Patient Chooses a Different Path.” It’s an excellent piece of writing and I recommend that you read it if you haven’t. By the way, Lori also happens to be the new president of METAvivor Research and Support, an organization I whole-heartedly support. Yay, Lori! And Congrats too!
Lori’s article got me thinking about how we so often tangle up opinions with judgments.
Undoubtedly, judgment often happens because we feel strongly about our opinions and it becomes hard for us to even entertain another point of view, especially if it’s very different from our own.
When you live in Cancer-land as a new resident or as a more tenured citizen like me, you see examples of this play out all the time. One such example is the concept of “cancer is a gift”. Umm… no. It is not, not NOT!
Sense my passionate opinion there?
And on an interesting side note, the first time I ever had interaction with Lori online was when she commented on that particular gift post. Even back then, she was a whole lot more open-minded about this particular cancer concept than I was or ever will be. I will never be calling cancer a gift. Not gonna happen.
As Lori so eloquently gave an example of in her article, support groups are places where opinions sometimes get snarled up with non-intentional (giving the benefit of a doubt here) judgment. Who hasn’t attended a support group seeking well, support, and instead heard someone offer advice or an opinion that is heavily laden with judgment, unintentional or otherwise?
The purpose of support of any kind is to support, not judge, so why is it often so hard to refrain from the latter?
And I would venture to say a whole lot of judging goes on not only when we choose different treatment paths, but also when we choose different survivorship paths.
The most simplistic illustration of the latter in Breast Cancer-land might be the pink ribbon, or even the color pink itself.
Should one don a pink ribbon or should one shun the dang ribbon altogether? Is it still okay to like pink? (yes!) Sometimes it seems like we must pick a side. Sad really, because it’s never been about pink or pink ribbons.
No matter how strongly we feel about our opinions and beliefs; they are still exactly that, opinions and beliefs.
Opinions are generally fine and mostly welcomed. Judgment, not so much. Judgment tends to shut doors. Judgment tends to stall communication or even halt it altogether.
When others disagree with us on how to “do cancer” or survivorship, it doesn’t necessarily make them wrong. Of course, it doesn’t make them right either. As a blogger, I try to keep this in mind, but I’m sure I’ve failed more than a few times. Though it’s never my intention, I’m sure I’ve sounded judgmental from time to time.
Bloggers are by nature an opinionated lot. I mean why else would most of us be blogging and/or reading/commenting on blogs, right? We are bloggers; we aren’t journalists. We are opinion sharers though most, myself included, do attempt to accurately report the facts that we tuck in with our opinions.
Bloggers and readers of blogs like sharing. A lot. We like the interaction. Heck, we even like the lively debates that sometimes get going.
Passionate opinions light fires, stir things up, start conversations and hopefully help to get things done.
Free speech is a wonderful thing. Shared opinions are wonderful as well.
However, when it comes to cancer treatment and/or survivorship paths, perhaps we could all be a little less judgmental.
Have you ever felt others were judging your cancer treatment decisions?
Have you ever felt as if your survivorship path was being judged?
Melinda
Monday 18th of August 2014
glad i found your blog. I just finished my chemo treatments-- one shy of the original recommended number due to an acute allergic reaction. Wow,have i gotten A LOT of opinions about what's best there...But more than that i find the way i'm judged at 1st glance because of the bald head, droopy eyes and swollen face startling and in stark contrast to the way i was treated before. it hurts.
Nancy
Monday 18th of August 2014
Melinda, I'm glad you found my blog too. Welcome! I'm sorry you had that bad allergic reaction and I imagine your decision to stop shy of one treatment did raise an eye brow or two. You know what's right for you. It's too bad there's so much judging that goes on based on our physical appearance too. I hear you loud and clear there. It does hurt, but you can't let it get to you too much. Find places and people where and with whom you can be real. Those are the best places to be and the best people to surround ourselves with anyway. Again, welcome and thanks for sharing.
Lori Marx-Rubiner
Monday 4th of August 2014
Nancy,
I am responding belatedly due to a whirlwind trip across the east coast for, among other things, METAvivor. Thank you for referencing my article and this very thought-provoking post.
I agree that this is a complicated issue, in part because our passions run so deep. I know that the women in that support group I led only wanted the best for Betty - they just couldn't hear that Betty knew best what was right for her. You touch on what I think is the heart of the matter - the good ole "do into others" rule. If you wouldn't want the person you're speaking with to tell you the opposite what you're about to say, it's best left unsaid. It's true when it comes to treatment decisions, wearing pink, supporting breast cancer organizations - and everything else in life!
I am lucky to be a part of a small-ish, closed online group. One of the things that we sometimes stop to marvel at is the degree to which we manage to share information without ever telling someone else what to do, and it reinforces that line for me wherever I look. Yes, we bloggers are certainly an opinionated bunch! But to ever think we know best is to compromise the pulpit our readers have gifted us. Thank you for the reminder!
Nancy
Tuesday 5th of August 2014
Lori, First of all, congrats to you on your new position at METAvivor! I am so proud of you and know you'll do a great job. Your comment once again illustrates your compassion and the kind heart that you have. I'm glad you have that online group where you all feel comfortable to share without ever feeling judged. That's what support should be like. Thank you for reading and commenting too. Your post really made me think about this topic, so thank YOU!
Mae
Monday 4th of August 2014
I agree that support means accepting others decisions even when they disagree with your own. One to one with a friend, what I do is listen as the person voices thoughts usually left silent. It helps.
I must add though that you don't go to an NRA group to discuss why you threw out your guns and a post treatment cancer group to discuss why you won't get treatment. When looking for support, it's important to research the group you are joining.
Nancy
Monday 4th of August 2014
Mae, You make a good point about researching your support group as some are obviously just better fits than others, or not 'fits' at all. On the other hand, I think breast cancer support groups should always embrace anyone who walks through the door, no matter what treatment path is chosen. Compassion can mean everything. Thanks for reading and commenting.
Beth L. Gainer
Sunday 3rd of August 2014
Hi Nancy,
I thought Lori's post was excellent, and it really got me thinking. After all, there is a fine line between opinion and judgement. I essentially "fired" a support group because they were more interested in telling me that my treatment protocol and doctors were all wrong. Really unsettled me. I wrote a post on that awhile back.
Disagreements are bound to occur, but if a member of a support group feels ostracized as I did, then it's time to let the group go.
Excellent post.
Nancy
Monday 4th of August 2014
Beth, I thought Lori's post was excellent, too, and yours was as well. I realize we all judge every single day in one way or another, but it's kind of about how a person goes about doing it too. Anyway, Lori's post really made me think about this topic again. Thanks for adding your thoughts, Beth.
eileen@womaninthehat.com
Saturday 2nd of August 2014
People are people, even if they have cancer. Opinions reign and we become isolated from each other. It's really a shame because I know of several people who've sought support in a group only to feel judged and more alone than when they started. This was a thought-provoking post. Acceptance of others' differences is definitely something to aspire toward. That's my opinion and I'm sticking to it! :)
Nancy
Sunday 3rd of August 2014
Eileen, Acceptance of others' differences is definitely something to aspire toward, cancer or no cancer. Thank you for reading and commenting.