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"Death Wishes" by Linda Catanzaro Boberg A #MetsMonday Featured Post #breastcancer #mbc #metastaticbreastcancer

“Death Wishes” by Linda Catanzaro Boberg – A #MetsMonday Featured Post

I’m so pleased to share the newest #MetsMonday featured post. I know, I know. It’s been a while. Too long.

This is Linda’s second #MetsMonday contribution. If you missed her first piece, The Daily Struggle with Fear, do check it out.

You might think the topic of what you want or do not want done or said at your funeral is a bit dark. Maybe so. But Linda has interjected wit and humor into her piece on this difficult-to-discuss topic. I’m almost certain you’ll appreciate her candor.

Also, just have to mention, my family does take funeral photos. Well, some of us do anyway. In fact, I took a photo of my dad shortly after he had died before they took him away. Why I did that, I’m not entirely sure. Just a reminder that here, too, we are all different in what we do, how we feel and what rituals we choose to follow when coping with death.

And we can’t forget that during this pandemic, funerals aren’t happening, at least not in the way we’re used to. But that’s a whole different topic.

Thank you, Linda, for sharing your thoughts on death wishes. It’s important to talk about these things.

Death Wishes

by Linda Catanzaro Boberg

I hate pictures taken at funerals. But then I hate funerals.

Does anyone like them?

Maybe this is a regional thing. (My son’s new girlfriend pointed out that things could be culturally or regionally different. It’s a good distinction.)

In my husband’s region of Illinois, people take pictures at funerals — the
deceased laid out, of flowers, of mourners. The first time I found this out was when we were watching family films and up popped a film of my husband’s grandfather in his casket.

I think I said, “Is this a joke?”

But it was not. They did this at every funeral. When my children and I showed up late for an infant nephew’s calling hours/wake, I expected anger. Instead I got a kiss and a, I’m so glad you missed that last half hour. They spent an hour taking pictures with the baby, near the baby. Thank God they didn’t hold the baby (although I have heard of that.) Didn’t spare me from seeing the picture of the dead child in his casket, blown up, framed, on my mother-in-law’s bedroom wall.

Shiver. Shake. Shudder. I made it crystal clear to my husband that I did not want pictures taken at my funeral.

Btw, I told him this before I got cancer.

My family (Chicagoans) doesn’t take any funeral pictures. Well, maybe one or two after the lunch that was always held at the Lilac Lodge near Hillside, Illinois. It was always a group family picture. I get that; we took pics of our family in front of the old house because we knew with my father’s death that the house was history.

"Death Wishes" a #MetsMonday featured post
My family in front of my parents’ home on the day of my dad’s funeral.

Now, with a stage 4 cancer diagnosis, I do think about death. More than I want to.

Husband’s brother-in-law lost his mother recently, and what did Dave get texts of?

Pics of her in the casket, then pics of her coffin at the cemetery. Then pics of her picture attached to the vault lid.

No!

“I wonder what my mom wants,” Husband asked.

“I do not want to be displayed when I die,” I blurted out.

He didn’t say anything right away, but I went on.

“I know when you’re dead you don’t have any say or control, so I’m telling you now. No wake! No Calling Hours! No picture on the outside of the box!”

“I wonder what my mom wants,” Husband says again.

“Ask her!” I don’t really give a flying fuck!

That’s jealousy in me, I’m sure. She’s ninety-five and at the rate she’s going, she’ll way out live me. My husband hates it when I tell him that his mother will live longer than me.

And there it is.

The reason people don’t talk about death. The fear that they are hastening the inevitable.

Well, guys, I hate to tell you this, but with Stage 4 cancer, I am sentenced to death. It’s coming, and I know it. I don’t know when or where, and I’m not exactly crazy that I’ve received this gift.

(Nancy, is this one of those cancer gifts people are crazy enough to think of?)

But I know that my husband is as scared as I am. I know my mother-in-law is afraid to live to 100 because she told me that she doesn’t want to watch her children die. (I am arrogant enough to think that she might mean me since I’m the sickest one of the children and children-in-law).

Then I remembered.

Husband was working on a speech about after-death wishes, something no one wants to talk about.

But here goes. These are my death wishes:

I want to be cremated. I do not want to be on display. I’ve seen several cancer victims in caskets, and it ain’t pretty. Right now, when I’m losing hair, eye lashes and all vestiges of what was once a nice-looking female, I don’t want anyone to look down on me and say, she looks good. Or, worse. They did a nice job of making her look good.

No!!!

I want a church service. Preferably, Catholic but I’ll take Lutheran if you can get Pastors Melissa and Scott to officiate. It’d be cool to be buried in St. Patrick’s Country Cemetery since that is the only burial grounds that I ever felt was comforting. Definitely, not Rosedale Cemetery. Oh, and I don’t want huge grave markers that have carvings of every single hobby I’ve ever had — vines, flowers, rosaries, folded hands in prayer.

NO!

Okay, maybe a book…

I want family gathered together. I know you can’t avoid tears, or reminiscing. In fact, one of the most touching sermons I’ve heard was when the minister said that we should all share our memories of Aunt Marge after the service.

So instead of saying, sorry for your loss, to Marge’s daughter, I told her a story about how Marge thought (mistakenly) that we had named our only daughter after her. They looked at me like I was nuts, but I thought the minister’s suggestion had merit!

I do not want to be placed in a box with the dress I wore to my son’s
wedding (that has faded and doesn’t fit). I don’t want flowers in my hair or
on my wrist (like my great grandmother). I don’t want Ave Maria played as
background music — or any other funeral dirges for that matter. Don’t let any deranged with grief family member talk you into a last-minute viewing (like my mother did for her mother). Shudder, shudder, shudder.

If there’s a need to feed people, take part of my life insurance and go to a
restaurant. Do not feed people back at my home. I don’t like cooking and I
definitely will haunt you if a bunch of women gather in my home to ‘help
out’, which means that they will end up gossiping about my lack of kitchen
accouterments and what they think is lousy decorating. Or wander through
my home and talk about the house/me.

No!

I want a party with little kids — my granddaughters — running all over,
giggling. If there’s music, I want upbeat music. No dirges, please. I want
pictures taken on the lawn of my home. I want a service and I want
eulogies which detail all the silly, stupid things I’ve done throughout my
years as their mother. (Daughter is fond of saying, “That’s going in the
eulogy.” Good!)

Hey. Know what?

I actually feel good that I’ve written this down! I don’t know — won’t know — if any of it is followed. But at least I’ve made vocal my ideas of what I want after I die. That’s more than most people do.

I especially do not want any mention of cancer. Fuck cancer. If it’s going to take me — and I hope that’s somewhere down the road but who the hell knows? — then let it die with me. Remember the good, not the bad. And cancer is bad.

Deep inhale of breath.

So there. I’ve done it.

What do you want for your funeral?

Do you have any last wishes that you want to share?

Is it hard for you to talk about death? Why or why not?

Are there death traditions that you find awful?

Bio: In 2013, Linda was diagnosed with Stage 3 Pleomorphic Lobular Carcinoma, ER+, PR+. She still doesn’t completely understand what the hell that means, but she feels like she’s earning an unwanted Ph.D. in cancer. She’s gone bald twice, once for cancer and once for brain surgery, and is in the process of again losing hair as she undergoes treatment for Stage 4 Metastatic Breast Cancer, which is currently stable. Wife of 43 years, mother of three, grandmother of one (with one on the way), and the sister of six women – NONE of which have cancer. Linda writes Tales of Resilience at her kitchen table under the pen name Adelyn Zara. Her first book, Finding Peace, is about a Cancer Haver. The second in the series, Making Magic, debuting on November 10, is about mental illness. Gardening, working against mental illness stigma, staying aware of cancer issues and writing are keeping this retired, former college student advisor busy.

Follow Linda on Facebook, Instagram and Twitter.

Click on the image below to visit Linda’s website.

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8 thoughts to ““Death Wishes” by Linda Catanzaro Boberg – A #MetsMonday Featured Post”

  1. Haha. Have not heard of people taking pictures of the dead person, or displaying those pictures later! Haha. I’m from Minnesota where we have “wakes” to view the open casket, which I thought was something people did everywhere. Not sure if that is also a regional thing.

    1. My husband’s community refers to them as Calling Hours – you may call at the funeral home, visit with the family, and view the casket. I’ve always heard it called Wake. Thanks for your comment, Lindsay.

  2. Well, I have to agree with Linda in many ways. No pictures , no open viewing of me dead, goodness knows I don’t look that great alive, I can’t begin to imagine what I will look like dead! No real traditional funeral at all really, just a get together where people can share some goofy stories and play a little music. Preferably some Frankie Vallie and the Four Seasons, maybe the Beatles, Sonny and Cher, Peter, Paul and Mary. Definitely bubbles and balloons for the little ones so they won’t always associate death with the macabre because it can be as beautiful as birth. I want people to leave with happy memories and a smile on their faces.

    1. Yup. Make the music songs that you enjoyed! I read a scene in a romance novel where a 100 year old lady dies and she had written her requests which included that every woman wear something bright and breezy, and that a Frank Sinatra cover band play at a celebration after the cemetery. I laughed all day long!

  3. Great blog! And I agree! I want cremation and I waffle all the time about where my ashes may be deposited. I am an only child in a family that is very broken and should they outlive me, my mom and stepdad will be the only ones concerned with my end. Probably best as I’ve already asked a very close friend who mostly “gets” how I feel about things, to rail at any gathering, about how much I have detested this entire process, on my behalf! Thank you for sharing, love and hugs to you <3

    1. Now, don’t you feel better just writing that down? I’d love the Beatles, The Association, even Shaun Mendes and One Republic! But not Ave Maria, Amazing Grace, or anything gospel-related since it’s all so sad.
      Thank you for responding!

  4. I thought about what a “good death” would look like even before my cancer diagnosis, which includes thoughts about funerals.

    For me, the funeral is completely unimportant…I won’t be there and what’s left is just a shell. Whatever transition and farewell rituals that my spouse and daughter needs are what will prevail. But, since I’ve actually sat down and talked to them about this, the plan at the moment is to donate my body to the local medical school. (I’ve already checked that they’ll still take me with a double mastectomy-no reconstruction.) No funeral, no casket, no ashes.

    Being a science fiction fan, the only thing I’d tentatively like to have happen is for whomever is with me as I die to look into my eyes and then throw back their head and give a huge bellow/scream to warn the afterlife that I’m coming.

    1. Thanks for your thoughts! I’m glad that you have spoken about it and that you’re realistic enough to know that what you want sometimes cannot happen. My mother and grandmother were so specific about their own wants and neither got what they asked for. My feeling is that you’re not there, so you won’t know. Lots of people have told me that they’d discussed their wishes, or that this post has made them voice their wishes. So, good! 🙂

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