Skip to main content
BCO_Logo_vert_RGB

Where Did You Go First for Online Information About Breast Cancer?

Back in 2004 when my mother was first diagnosed with breast cancer, the very first online resource I turned to was Breastcancer.org. I don’t remember how I ended up there or exactly why; I only know that I did. I still have articles I printed off from the site during that tumultuous time. 

I’ve been wondering lately about where many of us turn when that information seeking frenzy sets in after a cancer diagnosis hits your family. Often you hear advice suggesting that you should refrain from Googling or seeking medical information online. I don’t agree with that advice. There is a ton of valuable information and support to be found online. And come on, who in this day in age is not going to go online looking for information anyway?

The key is to turn to reputable sites which provide sound information. Breastcancer.org is one of them. As stated on their website, their mission is as follows:

Our mission is to help women and their loved ones make sense of the complex medical and personal information about breast health and breast cancer, so they can make the best decisions for their lives.

I like how the mission specifically includes ‘loved ones’ as well. Maybe that’s how I first ended up there…

Regardless, I appreciate the mission and it’s one reason why I am pleased to make another little announcement which, once again, is kind of a big deal, to me anyway. Breastcancer.org is now featuring my book, Getting Past the Fear:  A Guide to Help You Mentally Prepare for Chemotherapy, on their website’s shop for books page. I am very pleased and proud of this new partnership. Thank you, breastcancer.org, for your confidence in and support of my book.

I am very excited to share this news with you, my dear readers, and hope you’ll help me in passing it along!

Reaching more women and helping them face chemo for the first time feeling a little more prepared and a little less fearful, continues to be my mission, well one of them anyway!

Thank you for you help!

Where did you first look for information online about breast cancer?

Where do you turn most often these days? 

BCO_Logo_vert_RGB

16 thoughts on “Where Did You Go First for Online Information About Breast Cancer?

  1. I’m in total agreement with you Nancy. My first sight and chat room was via Breastcancer.org. The chat room helped me to understand my mother’s death without saying a whole lot. I ventured there every night for about two months. Of course with my own newly diagnoses of BC I felt threatened from all fronts.

    I’m sure my doctors wish I would not have ventured out onto the internet because I then wanted to be conservative rather than overly aggressive with my treatment (which may come to bite me one day but, one will really never know).

    The piece that I have found the most amazing is how much my choppy, half a$$ blog has helped friends who have had family member stricken by the disease. They’ve said my comments about how to approach someone with cancer has helped them immensely.

    HUGS Gal <3 ~D

    1. Diane, I honestly can’t remember how I landed on breastcancer.org, but I guess it doesn’t matter. I have never ventured into the chat room there… I don’t appreciate it when doctors suggest where we should or should not venture online. We can make those choices ourselves. Of course having them suggest a reputable site is totally fine and appreciated. I love your choppy, half a$$ blog! It has undoubtedly helped many, including me. Thanks for commenting.

  2. I agree, Nancy, that Breastcancer.org is a reputable site. And I’m so happy to hear that they are selling your book.

    I didn’t really turn to any online sites. When I was diagnosed, I had limited access to the Internet (which probably was a good thing — ha!) But I went to Gilda’s Club, called the American Cancer Society, and had friends. They were of great help. 🙂

    1. Beth, I’m glad you had those resources when you were diagnosed, especially the friends. I’m pretty darn pleased breastcancer.org is featuring my book. They aren’t actually selling it, they just feature it as a resource and link to Amazon. It’s a real show of confidence by a reputable site, which means a lot to me. Thanks for reading and for commenting too, Beth.

  3. I used Breastcancer.org too. I also looked at various PubMed publications, Journal of Oncology and others like this. My surgeon was happy to talk to me about all of this but my oncologist not so happy – oh well!

    1. Katie, It’s interesting that your surgeon and your oncologist had differing views about your online information. I think that’s probably pretty common. Thanks for reading and sharing!

  4. I went to Breastcancer.org first, too. Then I branched out and tested other chat groups. I was on Lifetime.com for about 4 years, and experienced my first loss of a good friend on that site. Oh my, what an emotional time that was for me!

    I still float around a bit, but read your blog the most. I feel comfortable here, like it is a “real” blog group, and one I have no compulsion to keep my mouth shut most of the time. I got really honest on your site several months ago, and was helped tremendously. I appreciate groups where I feel comfortable sharing what is on my mind and not having to worry about my story being repeated on open sites. I am just very skiddish, and trust is very important to me.

    You are the best! And I am happy to see that Breastcancer.org knows quality when they see it ! That is a big deal, girl, you have made it to the big time !!

    Big hugs, Fran

    1. Fran, I have not ever heard of Lifetime.com – there are a lot of sites to choose from I guess. I’m sorry about your friend, losing friends is so hard. I like hearing that you feel comfortable here, that means a lot. Thanks for reading and for your kind words and good wishes too.

  5. Breastcancer.org was and is one of my go-to places. The first place I looked online was my hospital’s website, where I learned about (and contacted) my local BC support group and got the contact info for the ACS Resource Center. The resource center rep pointed me to a couple of documents on the ACS website, another of my go-to places.

    1. Elissa, It’s great that many hospitals now have resource centers and/or patient navigators to help us find available resources. It’s so important to be able to do that. Thanks for sharing about the ones you turned to. Hope you’re doing well.

  6. Hi Nancy,
    One of the first places I went was breastcancer.org as well. And, in fact, they’re still my favorite site as they have everything I ever needed, from pre-diagnosis, to diagnosis, to chemo, to lumptectomy, to mastectomy and reconstruction. And, to your point, they also include the emotional side as well as offering resources for family members. They continue to be a source of the best info around, for me.

    1. Claudia, It seems there are quite a few of us who turned to Breastcancer.org first. It is a great resource and I’m pleased to have my book featured there. Thanks for reading and sharing.

    1. Eileen, Mine too. And thank you! I am pretty pleased about my partnership with them. Also, thanks again for the wonderful review you wrote for my book too, Eileen. I appreciate your support.

  7. Nancy, congratulations once again for your book being highlighted on breastcancer.org ! That is an accomplishment that you should never take lightly. I don’t know another person who has been recognized in this way. I just wanted to tell you I am very proud of you, and all of your accomplishments. I am sticking with you, Nancy, and have no doubt I will never be sorry. You are the best !

Leave a Reply

Your email address will not be published. Required fields are marked *